The Abby Sauerhoefer Fund for Mitochondrial Disease Research
Abby Sauerhoefer, daughter of Carol and Joe Sauerhoefer, has struggled with breathing and feeding issues from birth. By two months, we knew something was terribly wrong when she started having frequent, uncontrolled movements of her arms and legs. We learned that these episodes were infantile spasms or seizures. Extensive testing and treatments led to a diagnosis in July 2009 of a mitochondrial disorder. Along with daily seizures, this disorder does not allow her to walk, speak, or sit up, and her only means of nourishment is through a feeding tube. Seizures are managed, but not completely eliminated, with medication and diet. Although Abby is not able to talk, she expresses her emotions through “Abby songs”. She loves music and enjoys the company of other children. She moves around by rolling or using a stroller. We are hopeful that the foundation will find new treatments to help Abby and appreciate your support in finding a cure!
Purpose of the Fund – Proceeds from the Abby Sauerhoefer Fund for Mitochondrial Disease Research will be used to fund the most promising treatments for mitochondrial diseases. Her family and close friends created the Hope Flies™ – Walk for Abby in 2011 and the inaugural event raised $40,000 towards funding treatments and accelerating the path toward the cure.
To Donate, click here to donate online and indicate the “Abby Sauerhoefer Fund” in the donation category. The funds will be directed accordingly. Donations by check can be mailed to:
5424 Glenridge Drive
Atlanta, GA 30342
with an indication on the check on the memo line for Abby Sauerhoefer.