Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine

The Fireflyer Newsletter – Fall 2016

 

Fall 2016
Seventh Annual Hope Flies® Catch the Cure Event Raises Over $250,000 for Mitochondrial Disease Awareness and Research

The Foundation for Mitochondrial Medicine held its seventh annual celebration of Hope Flies Catch the Cure on September 23 at the Stave Room at American Spirits Distillery in Atlanta. Approximately 350 guests enjoyed the event, including open bars, a sit-down dinner, silent and live auctions, raffles and dancing to hits spun by from Track Seven Events.

 

Honorary party chairs were Margaret and John Robinson, longtime supporters of the Foundation and grandparents to Grace Martin, who has mitochondrial disease. The Foundation also paid tribute to Desmond Gray, an advocate for mitochondrial disease awareness and friend of the Foundation who lost his battle with the disease earlier this year at age 22.

 

The event raised over $250,000 and all proceeds benefit the foundation and its mission to accelerate treatments and cures for the many, many forms of mitochondrial diseases. Specifically, the Foundation for Mitochondrial Medicine (FMM) is supporting a new comprehensive mitochondrial disease clinical and research program at the University of Alabama at Birmingham (UAB) in conjunction with Seahorse Bioscience. The clinical program will diagnosis neuromuscular mitochondrial diseases using precision medicine models for monitoring therapeutic interventions.

 

Help Us Fund the FMM Clinical and Research Program at UAB!

At this year’s Hope Flies Catch the Cure event, we set a goal of $25,000 to be raised during our Special Appeal.  We were blown away by the generousity and support of our attendees when we raised over $36,000 during the program.

 

The UAB Mitochondrial Medicine Program will be a

  • Multi-disciplinary place where pediatric and adult patients can be diagnosed, treated and regularly evalutated.
  • Team of specialists in one place
  • Place where care is coordinated and a patient’s care is managed by a nurse navigator
  • New, non-invasive blood test exists to assess mitohcondrial function of the cells
  • Place where research is connected to related diseases, like Parkinson’s, Alzheimer’s, diabetes and more

Help us reach $50,000 for the UAB Program and fund two full months, which includes patient visits, research, case management and coordiate care from a Nurse Navigator. 

 

Global Mitochondrial Disease Awareness Week

September 18 – 24, 2016 was Global Mitochondiral Disease Awareness Week.  During GMDAW, organizations around the world dedicated to finding a cure and helping families affected by mitochondrial disease united in an effort to build awareness of the disease and the need for further research.

 

The Foundation for Mitochondrial Medicine launched the awareness week with simple daily activities to help us spread awareness about the disease.   Because of our partners, Sharecare and Star 94, we were able to reach over 38,000 individuals and make an impact for mitochondrial disease research!

 

This year’s awareness week may have come and gone, but it doesn’t mean we should stop raising awarness.  Connect with FMM on social media to help us raise awareness, fuel connections and the cures every day.

 

 

 

 

Thank to Our Hope Flies Catch the Cure 2016 Sponsors

This year’s Hope Flies Catch the Cure would not have been possible without the support of our sponsors!

 

 

Click Here to View a Complete List of Sponsors

Hope Flies Catch the Cure Pictures are LIVE!

 

View Photo Gallery

View photos from this year’s Hope Flies Catch the Cure Gala!

Order your prints online from Jen Pair Photography


Upcoming Events

 

Hope Flies Health Series
Translational Medicine and Therapies for Mitochondrial Diseases

November 2016
More Information Coming Soon!

 


Georgia Gives Day
November 17, 2016


 

Hope Flies Health Series

Details Coming Soon for Our Next Webinars!

Learn more about the scientific connection and interest researchers have in mitochondria.  Hear about a specific research projects FMM has co-funded.   Understand similar challenges mitochondrial patients and other related disease patients face and how the day-to-day can be managed while treatment options are still being researched in the laboratory.

Webinars are complimentary.


Donate to Our Cause:

Your financial support
accelerates entry into the clinical trial phases, which in turn propels research toward the cures.
Click here for more information. Every dollar counts!
© 2012 Foundation for Mitochondrial Medicine | 5424 Glenridge Drive NE | Atlanta, GA 30342

 

The Fireflyer Newsletter – August 2016

The Fireflyer Newsletter – August 2016

 

August 2016
Why Our Hope Flies – Grace and the Martin Family

Grace’s family paces themselves and takes life day by day. “We are never sure what the day will hold for us. In spite of these issues, Grace is a loving child who has a heart of gold and a great sense of humor. While there is currently no cure and little treatment for mitochondrial disease, our family has discovered the wonderful possibilities of having a child with special needs. Grace has opened doors for us, and through her we have met some of the most incredible people. Her therapists, teachers and doctors love and support her and have built great relationships with our family. We want for Grace peace, contentment and to feel the best that she can feel.”

 

Thank You to Our 2016 Hope Flies Sponsors!

Party Sponsors

Catalyst Fitness Custom Signs Today
Endive Fine Catering Jen Pair Photography
Michelle French Design Modern Luxury Media
Sharecare Social Flow
Star 94 Track Seven Events
Woo Skincare + Cosmetics

Platinum Sponsors

Abby’s Helping Hand
Carol and Joe Sauerhoefer
Adrian and John Robinson

Gold Sponsors

Boyd Collar Nolen & Tuggle Global Payments
J.C. Kennedy Foundation Allison and Erwin Reid
John W. Robinson Foundation Stealth BioTherapeutic
Terri and Frank Wren

 

CLICK HERE TO SEE A COMPLETE LIST OF SPONSORS

Enjoy Discount Pricing from FMM for Health Connect South on September 21st in Atlanta

Health Connect South 2016: Regional Assets, Global Impact
September 21, 2016 at the Georgia Aquarium Atlanta, GA

The theme this year is on partnerships and innovations in the Southeast that combat the top 10 leading causes of death worldwide, with over 400 health leaders, innovators, and next generation of health leaders in attendance.  Program includes panel sessions, keynote addresses, and time for collaboration at HCS 2016, serving to create interdisciplinary partnerships advancing health.

 

Click here for more information!

Click here to recieve 30% off your admission

Get Your Seats for Hope Flies Catch the Cure – Registration Closes September 19th

This year’s beautiful and spacious venue, The Stave Room at American Spirit Works, allows seating for all guests to enjoy a delicious family style dinner from Endive Catering. Click here to read about what else is new for this year’s event.

Registration will close on Friday, September 16

 

We look forward to having you join us to honor Margaret and John Robinson and remember our friend, Desmond Gray.  We promise another fun-filled evening with dinner, dancing, silent and live auction all to benefit treatments and programs for mitochondrial disease.

 

Upcoming Events

 

Regional Assets, Global Impact

September 21, 2016
Georgia Aquarium
Atlanta, GA

Click here for 30% off your admission

 


  

Hope Flies Catch the Cure
Friday, September 23, 2016

The Stave Room 
at American Spirit Works

 


Hope Flies Health Series
Translational Medicine and Therapies for Mitochondrial Diseases

November 2016
More Information Coming Soon!


 

Hope Flies Health Series

Details Coming Soon for Our Next Webinars!

Learn more about the scientific connection and interest researchers have in mitochondria.  Hear about a specific research projects FMM has co-funded.   Understand similar challenges mitochondrial patients and other related disease patients face and how the day-to-day can be managed while treatment options are still being researched in the laboratory.

Webinars are complimentary.


Donate to Our Cause:

Your financial support
accelerates entry into the clinical trial phases, which in turn propels research toward the cures.
Click here for more information. Every dollar counts!
© 2012 Foundation for Mitochondrial Medicine | 5424 Glenridge Drive NE | Atlanta, GA 30342
Foundation for Mitochondrial Medicine, 1266 W. Paces Ferry Road, Suite 301, Atlanta, GA 30327
Sent by info@mitochondrialdiseases.org in collaboration with
Constant Contact

 

 

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