The Fireflyer Newsletter – Fall 2016
|
|||||||||||||||||
 |
|||||||||||||||||
| Seventh Annual Hope Flies® Catch the Cure Event Raises Over $250,000 for Mitochondrial Disease Awareness and Research
The Foundation for Mitochondrial Medicine held its seventh annual celebration of Hope Flies Catch the Cure on September 23 at the Stave Room at American Spirits Distillery in Atlanta. Approximately 350 guests enjoyed the event, including open bars, a sit-down dinner, silent and live auctions, raffles and dancing to hits spun by from Track Seven Events.
The event raised over $250,000 and all proceeds benefit the foundation and its mission to accelerate treatments and cures for the many, many forms of mitochondrial diseases. Specifically, the Foundation for Mitochondrial Medicine (FMM) is supporting a new comprehensive mitochondrial disease clinical and research program at the University of Alabama at Birmingham (UAB) in conjunction with Seahorse Bioscience. The clinical program will diagnosis neuromuscular mitochondrial diseases using precision medicine models for monitoring therapeutic interventions.
|
|||||||||||||||||
|
|||||||||||||||||
| Donate to Our Cause: Your financial support accelerates entry into the clinical trial phases, which in turn propels research toward the cures. Click here for more information. Every dollar counts! |
|||||||||||||||||
|
|||||||||||||||||
Honorary party chairs were Margaret and John Robinson, longtime supporters of the Foundation and grandparents to Grace Martin, who has mitochondrial disease. The Foundation also paid tribute to Desmond Gray, an advocate for mitochondrial disease awareness and friend of the Foundation who lost his battle with the disease earlier this year at age 22.
September 18 – 24, 2016 was Global Mitochondiral Disease Awareness Week. During GMDAW, organizations around the world dedicated to finding a cure and helping families affected by mitochondrial disease united in an effort to build awareness of the disease and the need for further research.
The Fireflyer Newsletter – August 2016
The Fireflyer Newsletter – August 2016
|
|||||||||||||||||||||||||||||||||||||||
|
|||||||||||||||||||||||||||||||||||||||
| Why Our Hope Flies – Grace and the Martin Family
|
|||||||||||||||||||||||||||||||||||||||
|
|||||||||||||||||||||||||||||||||||||||
| Donate to Our Cause: Your financial support accelerates entry into the clinical trial phases, which in turn propels research toward the cures. Click here for more information. Every dollar counts! |
|||||||||||||||||||||||||||||||||||||||
|
|||||||||||||||||||||||||||||||||||||||
Grace’s family paces themselves and takes life day by day. “We are never sure what the day will hold for us. In spite of these issues, Grace is a loving child who has a heart of gold and a great sense of humor. While there is currently no cure and little treatment for mitochondrial disease, our family has discovered the wonderful possibilities of having a child with special needs. Grace has opened doors for us, and through her we have met some of the most incredible people. Her therapists, teachers and doctors love and support her and have built great relationships with our family. We want for Grace peace, contentment and to feel the best that she can feel.”
 |
|
