Eighth Annual Hope Flies® Catch the Cure
ATLANTA, June 21, 2017– The Foundation for Mitochondrial Medicine will hold its eighth annual celebration of Hope Flies: Catch the Cure on Friday, September 22 at the Stave Room at American Spirit Works. The event will feature a seated dinner, open bar, live dance music by Papa Sol, a live auction and a silent auction. The auctions will have vacation homes, travel, art, home decor, shopping sprees, jewelry, sports memorabilia, an outdoor lighting package from Outdoor Lights and much more. Tickets to the event are $200 per person and various sponsorship packages are available.
Event co-chairs are Kyle Orr Hinson and Anne Peace Worrell, native Atlantans and lifelong friends, chairing the event in honor of Kyle’s daughter Fannie Bradley who has mitochondrial disease. Anne is Fannie Bradley’s godmother. Fannie Bradley is a happy third grader with personality PLUS. She loves to dance ballet, play tennis, swim and especially loves to tell jokes. Looking at Fannie Bradley today, you would never know her start in this world was clouded with the unknown. She hit typical childhood milestones of sitting up unassisted, standing and walking, but hers came months behind the expected time frames. In her first 18 months, Fannie Bradley underwent scores of tests to get to the cause of her health issues. After MRIs, CT scans, scores of blood tests and then finally a muscle biopsy, Fannie Bradley was diagnosed with mitochondrial disease at 19 months old. Fannie Bradley has come a long way. Kyle, Anne and their families are sharing their time and talent in the hopes that research in mitochondrial research will soon yield more treatment options for the disease for both Fannie Bradley and for others. The event co-chairs are using the Twitter hashtag #KickMitoInTheFannie to engage supporters and to honor Fannie Bradley.
The event seeks to raise over $200,000 and all proceeds benefit the foundation and its mission to accelerate treatments and cures for the many forms of mitochondrial diseases. One ground-breaking program supported by FMM is research from the University of Alabama at Birmingham in the field of bioenergetics which measures mitochondrial function via a non-invasive blood test. By using a precision medicine approach, the bioenenergetic blood test could revolutionize the diagnosis and treatment of mitochondrial diseases and related diseases, including Alzheimer’s and Parkinson’s. Traditionally, mitochondrial disease is diagnosed with a muscle biopsy, which requires anesthesia and can be painful. With a bioenergetics blood test, doctors take a blood sample and can measure oxygen consumption in the cells and see how well mitochondria are functioning. The test can help doctors monitor progress of a patient over time and the impact of intervention. Doctors hope that eventually this test will be as commonplace as a blood glucose check performed by diabetic patients.
Hope Flies Catch the Cure is the Foundation’s annual signature event in Atlanta. Other events around the country also help raise funds and awareness for the Foundation of Mitochondrial Medicine. If you are interested in launching a regional Hope Flies event, or hosting a fundraiser in your city, contact the Foundation at email@example.com. For more information on the Foundation, please visit www.mitochondrialdiseases.org
The Foundation for Mitochondrial Medicine’s mission is to support the development of the most promising research and treatments for the many forms of mitochondrial disease. Treatments for mitochondrial disease could impact cures for Autism, Alzheimer’s, Parkinson’s, muscular dystrophy and more. For more information on FMM funded research such as functional MRI studies on cognitive fatigue and testing of new drug compounds, visit www.mitochondrialdiseases.org
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Media contact: Jennifer Grizzle, firstname.lastname@example.org or 404.291.1310
Global Mitochondrial Disease Awareness Week
September 18 – 24 is Global Mitochondrial Disease Awareness Week (GMDAW)
Organizations around the world dedicated to finding a cure and helping families affected by mitochondrial disease unite this week in an effort to build awareness of the disease and the need for further research.
Today, the Foundation for Mitochondrial Medicine launches the awareness week with simple daily activities that each of you can do to help us spread awareness about the disease. If everyone does just a few of these, you will help us raise critical understanding about mitochondrial function and disease.
The Foundation will cap the week with its annual Hope Flies Catch the Cure fundraiser on Friday, September 23 at the Stave Room at American Spirit Works. A fun night of cocktails, dinner, dancing and auctions, Hope Flies Catch the Cure helps raise funds to continue the Foundation’s mission to fund a cure, fuel connections and lead the way in mitochondrial disease research.
Change your social media profile pictures to FMM’s GMDAW logo today and keep it up all week. Post why you’re helping build awareness this week.
The Foundation for Mitochondrial Medicine will denote each day of the week with an awareness activity for all of our supporters to participate in and help spread awareness of mitochondrial disease. Here’s a quick list of the things you can do to help this week:
- Change your Facebook Profile Picture to an FMM graphic
- Share a story on social media about why your hope flies
- Participate in the Foundation Fund-A-Need with our Hope Flies Catch the Cure Event
- Calculate and share your “Firefly Number” by totaling the number of people you know with mitochondrial disease, diabetes, Alzheimer’s, Autism, chronic fatigue syndrome, ALS and Parkinson’s disease.
- Join the Foundation for the Hope Flies Catch the Cure gala on Friday, September 23 and share pictures on social media; tag your posts with #hopeflies
- Listen to STAR 94 for radio spots mentioning the awareness week
Your participation will help make this year’s Global Mitochondrial Disease Awareness Week a huge success and help raise critical funds needed for mitochondrial disease research. Make plans now to help share messages of hope and awareness starting September 18!
Global Mitochondrial Disease Awareness Calendar of Activities:
Hope Flies Catch the Cure – Mark Your Calendar
Hope Flies® Catch the Cure
Honoring Margaret and John Robinson
Friday, September 23, 2016 at The Stave Room
We are pleased to announce this year we are honoring Margaret and John Robinson for their support and advocacy on behalf of the entire mitochondrial disease community and in particular, granddaughter, Grace Martin. During this year’s event will also be remembering fondly, Desmond Gray, one of our Voices of Hope Flies, who sadly lost his battle with mitochondrial disease this Spring at age 22.
Hope Flies Catch the Cure is Atlanta’s annual fun party of friends and friends of friends, promoting awareness for mitochondrial disease and raising funds for research and treatment, including the exciting new Clinical and Research Program at the University of Alabama at Birmingham.
Since the Hope Flies® inception, awareness has increased for mitochondrial disease-an energy production problem—affecting 1 in 2,500 people.
Treating mitochondrial dysfunction continues to be a scientific priority in the fields of Alzheimer’s, Parkinson’s, diabetes, Autism, cardiac disease, ALS even glaucoma and more.
Please help us reach our goal of raising $350,000 and become a sponsor today! New sponsorship levels include reserved seating and a VIP Experience as well as a Table Host. Click here to see all sponsorship levels and benefits. To learn more about corporate sponsorships please contact us at: email@example.com
Become a Sponsor Today!
Please join us today to sponsor or purchase tickets at www.hopeflies.org/catchthecure.
Hope Flies Event Raises More than $210,000 for Mitochondrial Disease Research
The Foundation for Mitochondrial Medicine held its fourth annual fundraiser, Hope Flies Catch the Cure, on September 20 at the Mason Murer Art Gallery. Guests enjoyed the event, including dancing to retro ‘70s music from Yacht Rock Revue; a live auction with vacation packages and sports trips; a silent auction with art, shopping spree from Saks Fifth Avenue, Judith Ripka jewelry, sports memorabilia and travel; a raffle with a home lighting package from The Outdoor Lights; a special firefly lounge sponsored by Hublot luxury watches; delicious food from Endive catering and open bars provided by Georgia Crown distributors.
Event chairs were Danielle and Jim Poppens, and honorary party chairs were Laura and David Green. According to Laura Stanley, executive director of the Foundation for Mitochondrial Medicine, the event raised approximately $210,000 and welcomed many new supporters among the 500 ticket purchasers to the event. All proceeds benefit the foundation and its mission to fund research for mitochondrial disease treatments.
“The Foundation has supported treatment-oriented research studies like drug compound testing led by the Netherlands’ research team at Khondrion and brain studies on cognitive fatigue at Georgia Tech and Georgia State Universities, ” said Dr. John Shoffner, founding board member of The Foundation for Mitochondrial Medicine. “Our grants are also allowing new drug compounds to be tested, eventually leading to full clinical drugs trials. We are particularly excited about the promise of our new co-funded research project with the Alzheimer’s Drug Discovery Foundation. Even though one cure and one timeline don’t exist right now, support through fundraisers like Hope Flies Catch the Cure will allow researchers to move forward faster.
“The complex mitochondrial disorders that impair the body’s ability to adequately produce energy are also at the root of Parkinson’s disease, Autism, Alzheimer’s, chronic fatigue syndrome, as well as many types of childhood developmental delays,” continued Shoffner.
According to 2013 Hope Flies Catch the Cure co-chairperson Danielle Poppens, “1 in 2,500 people are affected with mitochondrial disease, and that number increases dramatically if you include other related diseases. Mitochondrial disease is difficult to diagnose and no patient, doctor or researcher can beat the disease alone. It will take dedication of many to help the children and adults with mitochondrial disease. We are delighted to have hosted another successful fundraising event.” The Poppens became involved because of their connection with their son’s Autism.
The Hope Flies Catch the Cure event is the Foundation’s annual event in Atlanta. Other Hope Flies Signature events around the country also help raise funds and awareness for the Foundation of Mitochondrial Medicine. If you are interested in launching a regional Hope Flies event, or hosting a fundraiser in your city, contact the Foundation at firstname.lastname@example.org For more information on the Foundation, please visit www.mitochondrialdiseases.org.