Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine

#Give28on28 for Rare Disease Day – Learn More

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What is #Give28on28?

The Foundation for Mitochondrial Medicine launches its annual fundraising campaign #Give28on28 to mark Rare Disease Day. Our goal is to have each supporter have 28 friends donate $28 by February 28th. It’s easy to help and it’s all via social media.

You can help by posting today and making posts throughout the month to build awareness and help us raise funds. All monies raised for the #Give28on28 will go towards the Foundation’s research programs.

Please visit the www.mitochondrialdiseases.org/give28on28 to get suggestions on Facebook and Twitter posts, use our hashtags #Give28on28 and #HopeFlies and direct your friends to our giving website: https://fmm.ejoinme.org/give28on28.

Email us at info@mitochondrialdiseases.org with questions or campaign ideas – we welcome your creativity! Thank you for caring about the rare disease community.

Quick Tips

Campaign Name: #Give28on28

Honoring: Rare Disease, globally recognized February 28

Dates: Campaign throughout Month of February

Supporting: Research programs of the Foundation for Mitochondrial Medicine, a non-profit 501(c)3.

How: Post on your social media (facebook, twitter, instagram) your participation in #Give28on28. See suggested social media posts for language, donation link, and hashtags. Please use #Give28on28 logo and ask friends to share.

Visit FMM social media sites to find stories and posts to share to your sites too.

 

#Give28on28 for Rare Disease Day!

Throughout the month of February we raise awareness and funds in honor of Rare Disease Day, globally recognized on February 28. We call our campaign #Give28on28 – its fun, simple, and extremely impactful for the mission to serve the mitochondrial disease community. This may seem hard to believe –  but there are presently no FDA approved treatments for mitochondrial disease. So if we all gave $28, on the 28th of February, and asked 28 friends on social media…..Wow!

If you would like to join the movement, email us at info@mitochondrialdisease.org and follow us on facebook and twitter.

Thank you for caring about the rare disease community! Click here to donate & Learn more

Our Hope Flies for Rare Disease Day!

FMM Shines the spotlight on Rare Disease Day 2017

Throughout the month of February we raised awareness and funds in honor of Rare Disease Day on February 28. Thank you to all our #give28on28 supporters far and wide for being a special part of our month of stories and awareness. If you would like to join the movement, become a #give28on28 supporter today with a gift of $28.00. Thank you for caring about the rare disease community!

Click here to support #give28on28

Join our mailing list to receive valuable information about our research and programing

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Give28lastday

Rare Disease Day

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Help FMM observe Rare Disease Day 2017:  “Join us in making the Voice of Rare Disease Heard”

Rare Disease Day is for patients, care givers, researchers, friends – for all of us – to show our support for the approximately 30 million people in the United States, and estimated 350 million worldwide, who suffer from over 7,000 different rare diseases and disorders.

Rare diseases truly do not impact a few, but many, when we add up all the diseases that fall into the rare category.  Research and awareness is critical as breakthroughs surrounding rare diseases so often help answer difficult questions asked by more commonly known diseases, aiding an even larger circle of patients.

You can get involved in the Rare Disease movement in a meaningful way with your friends at FMM. Email us at info@mitochondrialdiseases.org to join the #give28on28 movement! Thank you for caring about the rare disease community.https://fmm.ejoinme.org/give28on28

More information on the national and global Rare Disease movement, visit

http://www.rarediseaseday.org

#give28on28 stories – Jason

Stand with FMM in support of Rare Disease Day (Feb. 28), an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Share stories and #give28on28

story jason

 

 

#give28on28 stories – Lauren

Stand with FMM in support of Rare Disease Day (Feb. 28), an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Share stories and #give28on28

story lauren

Mitochondrial disease is an energy production problem that primarily affects the muscular and neurological systems. A cure for mitochondrial disease could impact cures for Autism, Alzheimer’s, Muscular Dystrophy, Parkinson’s and more. Helping us helps so many others!

#give28on28 stories – Chi Omega University of Georgia Chapter

Stand with FMM in support of Rare Disease Day (Feb. 28), an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Share stories and #give28on28
story chi o

Mitochondrial disease is an energy production problem that primarily affects the muscular and neurological systems. A cure for mitochondrial disease could impact cures for Autism, Alzheimer’s, Muscular Dystrophy, Parkinson’s and more. Helping us helps so many others!

#give28on28 stories – Belnap Family

Stand with FMM in support of Rare Disease Day (Feb. 28), an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Share stories and #give28on28

story belnap

#give28on28 stories – Caroline

Stand with FMM in support of Rare Disease Day (Feb. 28), an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Share stories and #give28on28

story caroline

#give28on28 stories – Abby

Stand with FMM in support of Rare Disease Day (Feb. 28), an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Share stories and #give28on28

story abby
If you live  near the Brood Brook, Connecticut area, check out the 2017 Walk for Abby! Click here for more info.

 

 

 

 

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