Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine

Support Giving Tuesday and Help FMM Fund the Cures

We ask you to kick off your giving season by participating in Giving Tuesday!

On September 18th, the FMM announced the new Foundation for Mitochondrial Medicine Clinic at the University of Alabama at Birmingham (UAB). In partnership with the UAB and Seahorse Bioscience, a biotech company from Boston, this program will include a comprehensive clinical center for the diagnosis and treatment of mitochondrial disease for pediatric and adult patients, along with an FMM funded nurse coordinator. Additionally, a reference laboratory will be established to develop a non-invasive research measurement of mitochondrial function (currently mitochondrial disease is diagnosed with a muscle biopsy and lumbar puncture). The clinic will begin seeing patients in 2016.

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Make a donation to support the UAB Clinic and help those affected by mitochondrial disease receive treatment.

Our goal is to raise $100,000 by the end of the year and we have already raised $25,000 during the Special Appeal at the Hope Flies® party. Wont’ you please help us reach this goal.

Many thanks in advance for your consideration. We look forward to seeing you again soon and reporting more exciting progress from the Foundation for Mitochondrial Medicine.

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40 Days of Glow: Day 36 – End of the Year Giving

Support FMM with Your End of the Year Giving – Make a Donation Today!

In the final days of 2014, we ask you to consider making a tax-deductible year-end gift to FMM.  Our friends and supporters have enabled us to increase awareness of mitochondrial disease, make connections to related diseases and fund treatment-oriented research projects.  The last five years have seen strong improvements and we are hopeful for what lies ahead.

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What’s to Come…

The scientific research community emphasizes mitochondria research more and more.  Recently, Dr. Pinchas Cohen, the Dean of Davis School of Gerontology, notes that there have only been three Nobel prizes for research in mitochondrial biology. He anticipates that quite soon there will be a Prize awarded to mitochondria research.  So, recognizing and treating mitochondrial dysfunction now is essential.

Get Your Glow On: Help FMM in any of the following ways!

1)      Contribute to an FMM Hope Flies Athlete’s page

2)      Donate in Honor or Memory of a Loved One

3)      Purchase an product from one of our Partners

4)      Give a gift of stock or certificates to FMM

5)      Sign up to sponsor or host a FMM Hope Flies Event

Need More Information?  Please contact info@mitochondrialdiseases.org for direct answers.

 

 

40 Days of Glow: Day 24 – Light Our Tree of Hope

Make a donation in honor or memory of someone to help us light our
Tree of Hope this holiday season

Because this year’s supporters, we have been able to partner with some of the brightest minds and most respected collaborative health non-profits, like the Alzheimer’s Drug Discovery Foundation and the Michael J. Fox Foundation. We are the only mitochondrial focused organization to engage in these types of joint venture treatment-oriented projects for many who suffer from mitochondrial disease, Alzheimer’s, Parkinson’s and others. These projects are focusing on the mitochondria, the cells’ energy factories, and the common denominator among the related diseases.

Web of Connectivity

The area of mitochondrial medicine is still relatively new and the discoveries of most mitochondria diseases have occurred within the last 30 years. The mitochondrial component is attributable to the causes of so many diseases and conditions; therefore, effectively treating mitochondrial dysfunction has the potential to impact the quality of life for many.

Your gift will help shine the light on new, effective drug discovery, patient diagnoses, awareness for mitochondrial disease and partnerships with related disease groups.

Any donation will allow FMM to grow and expand on national and international fronts: 1) raising awareness, 2) fueling connections to related diseases, and 3) funding the cures.

Donations made in honor or memory of a loved one will be added to our Tree of Hope and recognized year long on our website.

Donate Today and Light Our Tree of Hope!

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40 Days of Glow: Day 3 – Why Give?

One Cure, One Timeline Does Not Exist—Your Help Moves Us Forward Faster

As the Foundation for Mitochondrial Medicine continues with our “40 Days of Glow” campaign, we want to cover the important question everyone asks… WHY!

We all wish there were a silver bullet for many things in life, including to help make our loved ones better.  Drug development and translational research is long-hard road.  It is harder too, when diseases are complex and when no two stories are alike.

The validation process in the laboratory is complex and arduous, with many hurdles before drugs can even be tested in animal models.  Years later, healthy animal testing occurs, followed by testing in diseased animals—eventually, clinical trials for humans are reached.  And once there, many failures occur in this “Valley of Death.”

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Click here to learn more about “The Path to a Cure” 

Why Give to FMM?

The Foundation for Mitochondrial Medicine seeks to partner with related disease organizations so that strategically we can pool financial resources to make the dollars go farther.

  • Our funding of research has served to augment projects and donations from complementary sources.
  • By creating partnerships and collaborations with related disease organizations, FMM stands out as a convener and leader in joint venture philanthropy.  (Click on logos below to learn about partnerships with ADDF and Michael J. Fox Foundation for Parkinson’s Research)

ADDF Logo Michael J Fox Logo

Web of Connectivity

Get Your Glow On and Make a Difference
by Donating TODAY!

All donations big or small make a difference.  Give and Honor your loved ones!

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Hope Flies Catch the Cure is Celebrating 5th Anniversary

Laura Stanley, Dr. Shoffner, Lane and Richard Courts at Hope Flies Catch the Cure 2010.

Laura Stanley, Dr. Shoffner, Lane and Richard Courts at Hope Flies Catch the Cure 2010.

Can you believe it has already been five years since a group of longtime pals and newly acquainted friends got together to “do something to raise awareness and funds for mitochondrial disease?” What started out as an idea to have a backyard party in a local home quickly began to morph into something so much more. Before we knew it, things had moved beyond a party, beyond the backyard and into a larger concept, movement and into the empty 18th  floor of Cousins Properties’ Terminus Building.

Frank and Terri Wren with Kim and Bill Shepherd. 2011 Hope Flies Catch the Cure Chairs.

Frank and Terri Wren with Kim and Bill Sheppard. 2011 Hope Flies Catch the Cure Chairs.

The original organizers, led by Lane and Richard Courts, consisted of:  Missy Courts, Liz Ebert, Heather Edmiston, Laura Green, Kimberly Ichter, Margaret Kauffman, Margaret Martin, Michele Nichols, Kim Sheppard, Laura Stanley and Elizabeth Yates.  These novice party planners pulled off an amazing first time event, which hosted 600 attendees and raised $220,000.

In 2011, the Hope Flies Catch the Cure committee was led by event chairs, Kim and Bill Sheppard with Honorary Chairs, Frank and Terri Wren.   Hope Flies Catch the Cure raised over $200,000 for it’s second year and had attendance of friends and family from across the nation.

Margaret Martin, Virginia Maguire and Heather Edmiston

Margaret Martin, Virginia Maguire and Heather Edmiston

In 2012, more than 450 guests enjoyed Hope Flies Catch the Cure at Mason Murer Art Gallery. The event raised approximately $220,000. Party chairs were Heather and David Edmiston and Virginia and Matt Maguire. Honorary party chairs were Margaret and Chris Martin.

Last year, Hope Flies Catch the Cure has held on a lovely September night at Mason Murer Art Gallery. Guests enjoyed dancing to retro ‘70s music from Yacht Rock Revue, delicious food from Endive catering, and open bars provided by Georgia Crown distributors. Danielle and Jim Poppens were event chairs, and honorary party chairs were Laura and David Green. More than $210,000 was raised and all proceeds benefit the foundation and its mission to fund research for mitochondrial disease treatments.

Hope Flies Catch the Cure 2013 Organizing Committee Members

Hope Flies Catch the Cure 2013 Organizing Committee Members

Over the past four year, Hope Flies Catch the Cure has nearly $850,000.  Help us exceed our goal to raise over 1 million dollars in five years and have a record breaking year in 2014.

We’re gearing up for a special 5th year anniversary celebration, to toast FMM’s progress. This year’s committee will be led by Cara and Todd Lacey with Honorary Chairs, Lane and Richard Courts.

 

Fourth Annual 5K Walk for Abby benefiting the Foundation for Mitochondrial Medicine

AbbyJoin the Foundation for Mitochondrial Medicine for the fourth annual 5K “Walk for Abby: In Honor of Abby Sauerhoefer” on Saturday, April 26. This fun, family-friendly walk will help support special needs children as well as children and elderly afflicted with various forms of mitochondrial disease such as Autism, Parkinson’s, Alzheimer’s, and Lou Gehrig’s Disease.

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The event will include a three-mile walk (Main Street, Depot Street, Perry Lane and Reservoir Avenue), a raffle, face painting, DJ, and refreshments.

Cost is $20 for adults and $10 for children. All proceeds benefit Abby’s Helping Hand Foundation and the Foundation for Mitochondrial Medicine. For more information, or to register, visit: www.AbbysHelpingHand.com

How Walk for Abby Started:
In July of 2009, Abby’s parents took her to Atlanta for her yearly visit with Dr. Schoffner.   On their way home after the appointment and hear heart-breaking news about other families, The Sauerhoefer Family felt they needed to do more to help in the mission to find a cure this debilitating disease.

After meeting with the Foundation for Mitochondrial Medicine, the idea of a walk was born.  The foundation helped to design paraphernalia and a website and brainstormed on networking ideas.  Team Abby set what they thought was a lofty goal of $10,000.  That first year, Walk for Abby raised $45,000.  In total, Walk for Abby has raised over $130,000 to benefit the Foundation for Mitochondrial Medicine.

Can’t make it to the walk, but still want to support Abby? You can still donate by clicking the button below.

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The Foundation for Mitochondrial Medicine Joins the National #GivingTuesday Movement to Fund the Cures!

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The Foundation for Mitochondrial Medicine is participating in #GivingTuesday to help raise awareness about Mitochondrial Disease and other related diseases.   All funds raised on #GivingTuesday will go towards the Alzheimer’s Drug Discover Foundation (ADDF) and the Foundation for Mitochondrial Medicine (FMM)’s partnership to drive innovative translational research for mitochondrial dysfunction. To learn more about this partnership, click here.

a0d59274-1cdb-4144-8288-d6f30d2ccba9The Foundation for Mitochondrial Medicine has joined #GivingTuesday, a first of its kind effort that will harness the collective power of a unique blend of partners—charities, families, businesses and individuals— to transform how people think about, talk about and participate in the giving season. Coinciding with the Thanksgiving Holiday and the kickoff of the holiday shopping season, #GivingTuesday will inspire people to take collaborative action to improve their local communities, give back in better, smarter ways to the charities and causes they support and help create a better world. Taking place December 3,2013–the Tuesday after Thanksgiving–#GivingTuesday will harness the power of social media to create a national moment around the holidays dedicated to giving, similar to how Black Friday and Cyber Monday have become days that are,today,synonymous with holiday shopping.

To support FMM and #GivingTuesday, please donate on Tuesday, December 3, 2013!

CLICK HERE TO CONTRIBUTE

Become An All-Inclusive Multi-Event Hope Flies Partner

Hope Flies is the Foundation for Mitochondrial Medicine’s (FMM’s) signature fundraising program dedicated to celebrating hope and raising significant funds and awareness for the most promising mitochondrial disease research and treatments. Hope Flies fundraising events are held in various locations across the country and come in different shapes and sizes. Becoming an All-Inclusive Multi-Event Hope Flies Series Partner allows widespread national exposure, including our anchor event, Hope Flies Catch the Cure in Atlanta. A comprehensive and customized partnership plan is put together for each partner for a mutually beneficial relationship with maximize exposure.

Hope Flies Event Series Logos

Click here to view the 2013 Hope Flies Event Series Calendar

General Partnership Benefits

  • Business name/logo on signage at each event
  • Business name/logo on web site (www.mitochondrialdiseases.brentjohns.com) with link to company web site
  • Recognition in all printed event materials
  • Business name/logo in monthly newsletter with link to company web site
  • Customized partnership plan

Additional Benefit Options for Increased Giving Levels

  • Featured Donor Profile in newsletter
  • Facebook/Social Media Promotion
  • Invitations to Shop for the Cure events
  • Opportunity to provide guest blog on FMM’s Fireflyer Blog

Stay Connected with FMM

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