Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine

Hope Flies Catch the Cure is Celebrating 5th Anniversary

Laura Stanley, Dr. Shoffner, Lane and Richard Courts at Hope Flies Catch the Cure 2010.

Laura Stanley, Dr. Shoffner, Lane and Richard Courts at Hope Flies Catch the Cure 2010.

Can you believe it has already been five years since a group of longtime pals and newly acquainted friends got together to “do something to raise awareness and funds for mitochondrial disease?” What started out as an idea to have a backyard party in a local home quickly began to morph into something so much more. Before we knew it, things had moved beyond a party, beyond the backyard and into a larger concept, movement and into the empty 18th  floor of Cousins Properties’ Terminus Building.

Frank and Terri Wren with Kim and Bill Shepherd. 2011 Hope Flies Catch the Cure Chairs.

Frank and Terri Wren with Kim and Bill Sheppard. 2011 Hope Flies Catch the Cure Chairs.

The original organizers, led by Lane and Richard Courts, consisted of:  Missy Courts, Liz Ebert, Heather Edmiston, Laura Green, Kimberly Ichter, Margaret Kauffman, Margaret Martin, Michele Nichols, Kim Sheppard, Laura Stanley and Elizabeth Yates.  These novice party planners pulled off an amazing first time event, which hosted 600 attendees and raised $220,000.

In 2011, the Hope Flies Catch the Cure committee was led by event chairs, Kim and Bill Sheppard with Honorary Chairs, Frank and Terri Wren.   Hope Flies Catch the Cure raised over $200,000 for it’s second year and had attendance of friends and family from across the nation.

Margaret Martin, Virginia Maguire and Heather Edmiston

Margaret Martin, Virginia Maguire and Heather Edmiston

In 2012, more than 450 guests enjoyed Hope Flies Catch the Cure at Mason Murer Art Gallery. The event raised approximately $220,000. Party chairs were Heather and David Edmiston and Virginia and Matt Maguire. Honorary party chairs were Margaret and Chris Martin.

Last year, Hope Flies Catch the Cure has held on a lovely September night at Mason Murer Art Gallery. Guests enjoyed dancing to retro ‘70s music from Yacht Rock Revue, delicious food from Endive catering, and open bars provided by Georgia Crown distributors. Danielle and Jim Poppens were event chairs, and honorary party chairs were Laura and David Green. More than $210,000 was raised and all proceeds benefit the foundation and its mission to fund research for mitochondrial disease treatments.

Hope Flies Catch the Cure 2013 Organizing Committee Members

Hope Flies Catch the Cure 2013 Organizing Committee Members

Over the past four year, Hope Flies Catch the Cure has nearly $850,000.  Help us exceed our goal to raise over 1 million dollars in five years and have a record breaking year in 2014.

We’re gearing up for a special 5th year anniversary celebration, to toast FMM’s progress. This year’s committee will be led by Cara and Todd Lacey with Honorary Chairs, Lane and Richard Courts.

 

Hope Flies Event Raises More than $210,000 for Mitochondrial Disease Research

Photos by Jen Pair Photography

Danielle and Jim Poppens, Laura Stanley, David and Laura Green

The Foundation for Mitochondrial Medicine held its fourth annual fundraiser, Hope Flies Catch the Cure, on September 20 at the Mason Murer Art Gallery.  Guests enjoyed the event, including dancing to retro ‘70s music from Yacht Rock Revue; a live auction with vacation packages and sports trips; a silent auction with art, shopping spree from Saks Fifth Avenue, Judith Ripka jewelry, sports memorabilia and travel; a raffle with a home lighting package from The Outdoor Lights; a special firefly lounge sponsored by Hublot luxury watches; delicious food from Endive catering and open bars provided by Georgia Crown distributors.

Event chairs were Danielle and Jim Poppens, and honorary party chairs were Laura and David Green. According to Laura Stanley, executive director of the Foundation for Mitochondrial Medicine, the event raised approximately $210,000 and welcomed many new supporters among the 500 ticket purchasers to the event. All proceeds benefit the foundation and its mission to fund research for mitochondrial disease treatments.

Photos by Jen Pair Photography

Photos by Jen Pair Photography

“The Foundation has supported treatment-oriented research studies like drug compound testing led by the Netherlands’ research team at Khondrion and brain studies on cognitive fatigue at Georgia Tech and Georgia State Universities, ” said Dr. John Shoffner, founding board member of The Foundation for Mitochondrial Medicine. “Our grants are also allowing new drug compounds to be tested, eventually leading to full clinical drugs trials. We are particularly excited about the promise of our new co-funded research project with the Alzheimer’s Drug Discovery Foundation.  Even though one cure and one timeline don’t exist right now, support through fundraisers like Hope Flies Catch the Cure will allow researchers to move forward faster.

“The complex mitochondrial disorders that impair the body’s ability to adequately produce energy are also at the root of Parkinson’s disease, Autism, Alzheimer’s, chronic fatigue syndrome, as well as many types of childhood developmental delays,” continued Shoffner.

Photos by Jen Pair Photography

Hope Flies Catch the Cure 2013 Organizing Committee

According to 2013 Hope Flies Catch the Cure co-chairperson Danielle Poppens, “1 in 2,500 people are affected with mitochondrial disease, and that number increases dramatically if you include other related diseases. Mitochondrial disease is difficult to diagnose and no patient, doctor or researcher can beat the disease alone. It will take dedication of many to help the children and adults with mitochondrial disease. We are delighted to have hosted another successful fundraising event.”  The Poppens became involved because of their connection with their son’s Autism.

The Hope Flies Catch the Cure event is the Foundation’s annual event in Atlanta. Other Hope Flies Signature events around the country also help raise funds and awareness for the Foundation of Mitochondrial Medicine.  If you are interested in launching a regional Hope Flies event, or hosting a fundraiser in your city, contact the Foundation at info@mitochondrialdiseases.org  For more information on the Foundation, please visit www.mitochondrialdiseases.org.

 

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