Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine

The Fireflyer Newsletter – May 2016


 

May 2016
Hope Flies Catch the Cure – Join Us on September 23rd!

 

We are pleased to announce this year we are honoring Margaret and John Robinson for their support and advocacy on behalf of the entire mitochondrial disease community and in particular, granddaughter, Grace Martin.  During this year’s event will also be remembering fondly, Desmond Gray, one of our Voices of Hope Flies, who sadly lost his battle with mitochondrial disease this Spring at age 22.

 

Hope Flies Catch the Cure is Atlanta’s annual fun party of friends and friends of friends, promoting awareness for mitochondrial disease and raising funds for research and treatment, including the exciting new Clinical and Research Program at the University of Alabama at Birmingham

 

Hope Flies Golf Tournament Raises over $11,000 in First Outing

The light drizzle quickly changed to bright sunshine on Friday, April 22 for the inaugural Hope Flies Golf Tournament at the North Fulton Golf Course at Chastain Park. Golfers were treated to a welcome and thanks by tournament host committee members Georgia sports legends Former Atlanta Falcons Coach Dan Reeves, Atlanta Falcons linebacker great Tommy Nobis and Former UGA football coach and Athletic Director Vince Dooley during lunch. They were joined by Georgia Senator Hunter Hill and Tommy Thomas of Tommy’s Barber Shop.

 

After a delicious lunch provided by Chick-fil-A at Chastain Square and the Great American Cookie Company, the golfers were out on the course for a shotgun start at 12:30. Golfers completed 18 holes in a four-man scramble format and the team from Arrow Exterminators took first place. The tournament raised over $11,000 to benefit the Foundation for Mitochondrial Medicine.

 

 

Hope Flies Health Series Webinar – Parkinson’s and Mitochondrial Disease

On April 6th, the Foundation for Mitochondrial Medicine (FMM) hosted its second Hope Flies Health Series Webinar:  Research Connecting Parkinson’s Disease and Mitochondrial Disease. The Foundation developed the webinar with partners including the Michael J. Fox Foundation (MJFF), Wilkins Parkinson’s Foundation and Sharecare to bring greater awareness to mitochondrial disease and its connection to Parkinson’s disease.

 

 

 

 

 

How to Support the Forthcoming FMM Clinical and Research Program at the University of Alabama Birmingham

FMM’s partnership with Seahorse Bioscience and the University of Alabama at Birmingham will address the unmet clinical, diagnostic and therapeutic needs of the mitochondrial patient community. 

 

Our goal is to raise $250,000 by year end which will provide both the clinical physician resources, including the key Nurse Navigator role and the research program elements for clinical certification of the Bioenergetics Health Index, a non-invasive blood test assessing mitochondrial function.  This blood test has the potential to replace the traditional muscle biopsy and can also be applied to other neurodegenerative diseases, like Parkinson’s and Alzheimer’s, where mitochondrial dysfunction is a key contributor.

 

Your financial support to our Hope Flies Campaign for the Cures will enable the program to open more quickly.  

Read more details about the FMM program at UAB here.

Upcoming Events

 

Hope Flies Health Series
Cognitive Fatigue and Mitochondrial Disease

August 2016
More Information Coming Soon!

 


  

Hope Flies Catch the Cure
Friday, September 23, 2016

 


Hope Flies Health Series
Translation Medicine and Therapies for Mitochondrial Diseases

November 2016
More Information Coming Soon!


 

Hope Flies Health Series

Details Coming Soon for Our Next Webinars!

Learn more about the scientific connection and interest researchers have in mitochondria.  Hear about a specific research projects FMM has co-funded.   Understand similar challenges mitochondrial patients and other related disease patients face and how the day-to-day can be managed while treatment options are still being researched in the laboratory.

Webinars are complimentary.



Join the our team – Become a Multi-Event Sponsor

 

This is an all-inclusive multi-event Hope Flies sponsorship partnership wtih the Foundation for Mitochondrial Medicine.  A variety of Hope Flies events are held across the country each year, including awareness events and programs.  A comprehensive and customized partnership plan can be put together for each participant.  For more information, contact us at info@mitochondrialdiseases.org.

 

 

Donate to Our Cause:

Your financial support
accelerates entry into the clinical trial phases, which in turn propels research toward the cures.
Click here for more information. Every dollar counts!
© 2012 Foundation for Mitochondrial Medicine | 1266 West Paces Ferry Road, Suite 301 | Atlanta, GA 30327

 

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