Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine

#give28on28 Rare Disease Day Campaign

#give28on28

During the month of February, help FMM spread awareness for mitochondrial disease and the rare disease communities. We call the campaign #give28on28 – its fun, simple, and extremely impactful for the mission to serve the mitochondrial disease community. This may seem hard to believe –  but there are presently no FDA approved treatments for mitochondrial disease. So if we all gave $28 in honor of Raise Disease Day observed around the world on 2/28, and asked 28 friends on social media…..Wow!

What makes a disease rare? According to rarediseaseday.us, a disease, disorder, illness or condition that affects less than 200,000 people in the United States. Rare Disease Day is for patients, care givers, researchers, and friends to show support for the approximately 30 million people in the United States, and estimated 350 million worldwide, who suffer from over 7,000 different rare diseases and disorders. That means approximately 1 in 10 Americans have a rare disease, and of that number, half are youth.  Research is critical as breakthroughs surrounding rare diseases so often help answer difficult questions asked by more commonly known diseases, aiding an even larger circle of patients.

FMM annually marks Rare Disease Day with its campaign #Give28on28. Our goal is to have each supporter have 28 friends donate $28 by February 28th. It’s easy to help and it’s all via social media. You can help by posting today and making posts throughout the month to build awareness and help us raise funds. All monies raised for the #Give28on28 will go towards the Foundation’s research programs. Be sure and use our hashtags #Give28on28 and #HopeFlies and direct your friends to our giving website: https://fmm.ejoinme.org/give28on28. See below for sample posts and logos to get you on your way; don’t forget to add personal notes of why you are supporting the campaign or share links from the FMM FB or Twitter feeds on your own social media. Thanks for caring about the Rare Disease Community!

To learn more about rare diseases, please visit www.hopeflies.org or http://rarediseaseday.us

Download 1: FB banner  Download 2: Selfie sign  Download 3: Square for social avatar and other social media

 

click on logos to download

Sample Facebook Posts to use with #give28 logos:

example 1
You may recall from 5th grade science that mitochondria are the powerhouse of the cell. But they are really the powerhouse of your entire body and when we age, our mitochondria age too and mitochondrial degeneration is the common denominator of all neurodegenerative diseases like Alzheimer’s, Parkinson’s and other diseases like diabetes, Autism and some cancers too. Unlocking a cure to mitochondrial disease can unlock the cure to much more. Help me with my #give28on28 campaign and in the meantime, mind your mitochondria!! https://fmm.ejoinme.org/give28on28
 example 2
Rare Disease Day is coming up on February 28. I am raising funds for the Foundation for Mitochondrial Medicine which supports research to fund treatments and a cure for the mitochondrial disease. Please help me meet my goal on February 28 at https://fmm.ejoinme.org/give28on28. #give28on28 #hopeflies
 example 3
Learn more about the cause I’m supporting on Rare Disease Day and some inspiring people that live with mitochondrial disease every day at www.mitochondrialdiseases.org. #give28on28 #hopeflies https://fmm.ejoinme.org/give28on28

Sample Twitter Post:

example 1

I am supporting @FoundMM for #RareDiseaseDay. Its called #give28on28, to raise funds & awareness for mitochondrial disease community. My goal is to have 28 friends donate $28 each by 2/28. Please share with friends, and donate: https://fmm.ejoinme.org/give28on28

example 2

I am supporting @FoundMM for #RareDiseaseDay. My goal is to have 28 friends donate $28 each by 2/28. Please share with friends, and donate: https://fmm.ejoinme.org/give28on28 #give28on28 #hopeflies

Click on the icons to be directed to FMM’s social media sites

Use #give28one28 during month of February to show your support for Rare Disease Day & FMM

Easy step-by-step social media posting, re-tweeting and liking tips: Posting on Facebook and Twitter

Donation link: https://fmm.ejoinme.org/give28on28

Click on the stories to learn more about some inspiring people that live with mitochondrial disease every day.


Stories – Colby

Stories – Polatty Family

Stories – Amanda

Stories – Drew

Stories – Maddie

Stories – Sebastian

Stories – Susan

Stories – Desmond

Stories – Michaela

Stories – Abby
Stories – Belnap Family

Stories – Chi Omega University of Georgia

Stories – Jason

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