Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine

#give28on28 Rare Disease Day Campaign

#give28on28

During the month of February, help spread awareness for mitochondrial disease and the rare disease communities. We call the campaign #give28on28 – its fun, simple, and extremely impactful for the mission to serve the mitochondrial disease community. This may seem hard to believe –  but there are presently no FDA approved treatments for mitochondrial disease. So if we all gave $28 in honor of Raise Disease Day observed around the world on 2/28, and asked 28 friends on social media…..Wow!

What makes a disease rare? According to rarediseaseday.us, a disease, disorder, illness or condition that affects less than 200,000 people in the United States. Rare Disease Day is for patients, care givers, researchers, and friends to show support for the approximately 30 million people in the United States, and estimated 350 million worldwide, who suffer from over 7,000 different rare diseases and disorders. That means approximately 1 in 10 Americans have a rare disease, and of that number, half are youth.  Research and awareness is critical as breakthroughs surrounding rare diseases so often help answer difficult questions asked by more commonly known diseases, aiding an even larger circle of patients.

Thanks for considering a donation of $28 in honor of FMM’s Rare Disease Day campaign and helping us spread the word as a part of FMM’s Rare Disease movement. Be on the lookout for posts to like, share, and re-tweet on Facebook and Twitter. Please use #give28on28 on social media during month of February. Thank you!

 To learn more about rare diseases, please visit www.hopeflies.org or http://rarediseaseday.us

click on logos to download

Sample Facebook Posts:

a.During the month of February, I am participating in an awareness & fundraising campaign for #RareDiseaseDay, in support of the @FoundationforMitochondrialMedicine. My goal is to have 28 friends donate $28 each by February 28. I hope y0u’ll help me meet my goal!

Please share this with your friends, and donate here: https://fmm.ejoinme.org/give28on28

#give28on28 #hopeflies

b. During the month of February, I am participating in an awareness & fundraising campaign for #RareDiseaseDay, in support of the @FoundationforMitochondrialMedicine. My goal is to have 28 friends donate $28 each by February 28. I hope you’ll help me meet my goal, thanks! Please share to show you care about Rare, and donate here: https://fmm.ejoinme.org/give28on28

#give28on28 #hopeflies

c. This February I am participating in an awareness & fundraising campaign for #RareDiseaseDay, in support of @FoundationforMitochondrialMedicine. Its called #give28on28 – fun, simple and extremely impactful way to support the mitochondrial and related disease communities. This may seem hard to believe but there are presently no FDA approved treatments for mitochondrial disease. If we all gave $28, by 2/28, and asked 28 friends on social media, imagine the impact! Please share if you care about Rare, and donate here: https://fmm.ejoinme.org/give28on28
#hopeflies #give28on28

Sample Twitter Post:

a.  I am supporting @FoundMM for #RareDiseaseDay. Its called #give28on28, to raise funds & awareness for mitochondrial disease community. My goal is to have 28 friends donate $28 each by 2/28. Please share with friends, and donate: https://fmm.ejoinme.org/give28on28

b. I am supporting @FoundMM for #RareDiseaseDay. My goal is to have 28 friends donate $28 each by 2/28. Please share with friends, and donate: https://fmm.ejoinme.org/give28on28 #give28on28 #hopeflies

Click on the icons to be directed to FMM’s social media sites

Use #give28one28 during month of February to show your support for Rare Disease Day & FMM

Easy step-by-step social media posting, re-tweeting and liking tips: Posting on Facebook and Twitter

Donation link: https://fmm.ejoinme.org/give28on28

Click on the stories to learn more about some inspiring people that live with mitochondrial disease every day.


Stories – Colby

Stories – Polatty Family

Stories – Amanda

Stories – Drew

Stories – Maddie

Stories – Sebastian

Stories – Susan

Stories – Desmond

Stories – Michaela

Stories – Abby
Stories – Belnap Family

Stories – Chi Omega University of Georgia

Stories – Jason

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