Instead of sitting comfortably at my kitchen table as I type, I’m leaning against the wall of a small chapel in the church where my son works. While I
like serving as the accompanist of this week’s MAD camp (music, arts, and drama), keeping up with the schedule requires a lot of coffee.
A two-and-a-half-hour nap helped yesterday afternoon. But even when followed by an early bedtime, this morning’s get up still got to me today. Since I used to serve in this kind of capacity without concern, my lack of energy frustrates me.
But I’m not alone.
While the long, lazy days of summer lean toward leisurely fun, between heat intolerance and energy limitations, mitochondrial disease robs many of that enjoyment. So, we have to get creative.
Here’s a few of my latest ideas:
- Ask for help
Knowing my issues, my son scheduled my classes for later in the morning. So, tomorrow, I’ll sleep late and come in for just my part. He doesn’t know that yet, but by sticking within my boundaries, I’ll survive the week on more than just fumes.
It’s hard to ask but worth it.
- Play indoors
When two of my grandchildren stopped by last weekend, they found a small sized parachute in the back of our toy closet. I purchased it years ago but forgot about it. My husband joined in, so, we each grabbed two handles and waved the soft fabric up and down. When Adam ran underneath, we tried to catch him. When Catherine found some soft balls, we bounced them high. The indoor game proved a highlight of our time together, thus, I will pull it out again soon.
While I care about cleanliness and not breaking favorite trinkets, stretching my comfort zone proved worthwhile. Hide and Seek works well indoors too. As do treasure hunts. And my son recommends www.ultimatecampresources.com for arts and crafts ideas.
- When all else fails… Google!
Google local movie theaters for free or low-cost morning movies. Many offer them through the summer months.
Local libraries make for a good outing too. Check out movie classics or old musicals. Read a book out loud as a family or listen to one on tape. Make and keep reading or movie watching goals.
County pools offer affordable indoor swimming options. And small, local museums abound—at least in my area. A simple Google search can open a world of indoor possibilities.
So, think outside the box. Or buy several large cardboard boxes and let your kids build a bedroom fort, complete with tunnels. Limitations will always leave us prone to feeling left out. But with some ingenuity and flexibility, we can serve up some memorable indoor fun.
About the Author: Susan Schreer Davis lives with her husband, their cat named, Eggs, and the challenging effects of mitochondrialdisease. Learn more about Susan, her latest book and many songs at: www.susanschreerdavis.com