Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine

The Fireflyer Newsletter – December


 

Winter 2016
12/6/16 Noon EST teleconference for Mitochondrial Myopathy clinical trial discussion

Mitochondrial Myopathy research teleconference Tuesday, Dec. 6th at Noon, EST.  

This summer, Stealth BioTherapeutics (Stealth BT) shared preliminary positive data from the MMPOWER study. Study purpose was to evaluate safety and efficacy of elamipretide (previously known as Bendavia) in adults with primary mitochondrial myopathy and genetically confirmed mitochondrial disease. Mitochondrial myopathy is primarily characterized by muscle weakness, fatigue, and exercise intolerance. Patients with genetically confirmed mitochondrial disorders may also experience multi-system organ involvement and myriad complications related to the body’s inability to adequately generate energy (ATP) at the cellular level. The MMPOWER trial measured changes in the participant’s ability to complete a Six-Minute Walk Rest, a performance-based measure of functional exercise capacity.
Join us for a collaborative presentation hosted by MitoAction, the United Mitochondrial Disease Foundation, the Foundation for Mitochondrial Medicine, with Stealth BT to learn more about the results from the MMPOWER trial, and information about the planned Phase 3 clinical trial. Presentation intended to educate and inform patients, parents, caregivers, family members, and others involved in the daily lives of adults and children with mitochondrial disease.
Stealth BT’s CEO, Reenie McCarthy, will lead the Dec. 6 presentation.  To participate online, visit: https://umdf.webex.com/umdf/onstage/g.phpMTID=efc7c214b1ce715ef3370d70a34069ab8

#20 Days of Glow – Day 1

Friends,

This month we are excited to share stories and updates as our Hope Flies for the Holidays. This time of the year makes all of us take stock in what’s important.  We close the year with a focus on loved ones, family, and friends and at the same time, we build hopes and dreams for what the New Year can hold! Hope Flies is the FMM brand that evokes positivity, and the feeling that something great can happen.

People with mitochondrial disease, children, teens, adults, all struggle daily. So do the many people affected by the cousins of mitochondrial disease—Autism, Parkinson’s, Alzheimer’s, ALS, Chronic Fatigue, diabetes, epilepsy and more. Get your Glow on as we share stories and resources on our website and social media with you, our important partner, in our quest for better treatments and cures for the many forms of Mitochondrial Disease. 

As we kick off day 1, we share information about our Mitochondrial Myopathy research teleconference today, Tuesday, December 6th at Noon, EST. Please sign up!

Join the conversation by liking us on Facebook, Twitter and Instagram.  Thank you!

www.hopeflies.org

Click on the icons to be directed to FMM’s social media sites

Mark Your Calendar – Mitochondrial Medicine 2017 Symposium

 

Mitochondrial Medicine 2017: Southeast Regional Symposium.  
Sessions for clinicians, patients and families with leading experts in the field. 

Donate to Our Cause:

Your financial support
accelerates entry into the clinical trial phases, which in turn propels research toward the cures.
Click here for more information. Every dollar counts!
© 2012 Foundation for Mitochondrial Medicine | 5424 Glenridge Drive NE | Atlanta, GA 30342

 

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