Eighth Annual Hope Flies® Catch the Cure
ATLANTA, June 21, 2017– The Foundation for Mitochondrial Medicine will hold its eighth annual celebration of Hope Flies: Catch the Cure on Friday, September 22 at the Stave Room at American Spirit Works. The event will feature a seated dinner, open bar, live dance music by Papa Sol, a live auction and a silent auction. The auctions will have vacation homes, travel, art, home decor, shopping sprees, jewelry, sports memorabilia, an outdoor lighting package from Outdoor Lights and much more. Tickets to the event are $200 per person and various sponsorship packages are available.
Event co-chairs are Kyle Orr Hinson and Anne Peace Worrell, native Atlantans and lifelong friends, chairing the event in honor of Kyle’s daughter Fannie Bradley who has mitochondrial disease. Anne is Fannie Bradley’s godmother. Fannie Bradley is a happy third grader with personality PLUS. She loves to dance ballet, play tennis, swim and especially loves to tell jokes. Looking at Fannie Bradley today, you would never know her start in this world was clouded with the unknown. She hit typical childhood milestones of sitting up unassisted, standing and walking, but hers came months behind the expected time frames. In her first 18 months, Fannie Bradley underwent scores of tests to get to the cause of her health issues. After MRIs, CT scans, scores of blood tests and then finally a muscle biopsy, Fannie Bradley was diagnosed with mitochondrial disease at 19 months old. Fannie Bradley has come a long way. Kyle, Anne and their families are sharing their time and talent in the hopes that research in mitochondrial research will soon yield more treatment options for the disease for both Fannie Bradley and for others. The event co-chairs are using the Twitter hashtag #KickMitoInTheFannie to engage supporters and to honor Fannie Bradley.
The event seeks to raise over $200,000 and all proceeds benefit the foundation and its mission to accelerate treatments and cures for the many forms of mitochondrial diseases. One ground-breaking program supported by FMM is research from the University of Alabama at Birmingham in the field of bioenergetics which measures mitochondrial function via a non-invasive blood test. By using a precision medicine approach, the bioenenergetic blood test could revolutionize the diagnosis and treatment of mitochondrial diseases and related diseases, including Alzheimer’s and Parkinson’s. Traditionally, mitochondrial disease is diagnosed with a muscle biopsy, which requires anesthesia and can be painful. With a bioenergetics blood test, doctors take a blood sample and can measure oxygen consumption in the cells and see how well mitochondria are functioning. The test can help doctors monitor progress of a patient over time and the impact of intervention. Doctors hope that eventually this test will be as commonplace as a blood glucose check performed by diabetic patients.
Hope Flies Catch the Cure is the Foundation’s annual signature event in Atlanta. Other events around the country also help raise funds and awareness for the Foundation of Mitochondrial Medicine. If you are interested in launching a regional Hope Flies event, or hosting a fundraiser in your city, contact the Foundation at firstname.lastname@example.org. For more information on the Foundation, please visit www.mitochondrialdiseases.org
The Foundation for Mitochondrial Medicine’s mission is to support the development of the most promising research and treatments for the many forms of mitochondrial disease. Treatments for mitochondrial disease could impact cures for Autism, Alzheimer’s, Parkinson’s, muscular dystrophy and more. For more information on FMM funded research such as functional MRI studies on cognitive fatigue and testing of new drug compounds, visit www.mitochondrialdiseases.org
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