Join #give28on28 movement for Rare Disease Day 2017
Rare Disease Day is for patients, care givers, researchers, friends – for all of us – to show our support for the approximately 30 million people in the United States, and estimated 350 million worldwide, who suffer from over 7,000 different rare diseases and disorders.
Rare diseases truly do not impact a few, but many, when we add up all the diseases that fall into the rare category. Research and awareness is critical as breakthroughs surrounding rare diseases so often help answer difficult questions asked by more commonly known diseases, aiding an even larger circle of patients.
How can I get involved in the Rare Disease movement?
Please join our #give28on28 campaign to raise awareness and support research efforts for mitochondrial disease.
During the month of February we really hope you’ll help us raise awareness and raise funds for research of our rare disease, mitochondrial disease, by donating $28 in honor of Rare Disease Day (globally recognized 2/28/2017). And we hope that you, as an FMM Ambassador, will encourage your friends to donate as well.
Our goal is for our FMM Ambassadors to raise $28 from 28 different friends by February 28. If you go over that number of friends or amount, that’s great! And if you don’t, that’s no problem too. Our primary objective is to raise awareness for Mitochondrial Disease while raising funds for research of this rare disease.
BUT WAIT, THERE’S MORE! The Ambassador who gets the most friends to donate wins two tickets to attend the Keynote Address for the FMM-UMDF Mitochondrial Medicine Symposium on Friday, April 7 and complimentary lodging on April 7 at the Grand Bohemian Hotel in Birmingham, Alabama for the Patient/Families Day to be held, on Saturday, April 8
All we need you to do is post or email information on your social media that we’ll send to you (which you can use as is or change to fit your style) 4 times during the month of February. Our goal is to make this turnkey for you so it takes as little time as possible.
If you’d like to be a part of the #give28on28 campaign that runs during the month of February, or if you have questions, please email FMM at firstname.lastname@example.org, subject
Thank you for caring about the rare disease community!
Watch the video to learn more about the global movement