Stealth BioTherapuetics clinical trials in mitochondrial disorders Update
The following is a summary of a live presentation offered through joint collaboration with UMDF, MitoAction and the Foundation for Mitochondrial Medicine to the mitochondrial disease patient and family community on August 11, 2017. Stealth BioTherapeutics’ CEO Reenie McCarthy and Chief Clinical Development Officer Jim Carr, Pharm.D., presented an update on Stealth’s clinical trials in […]Read More
Hope Was Flying on September 22nd!
8th Annual Hope Flies Catch the Cure a Smashing Success Thank you to Hope Flies® Catch the Cure event co-chairs, Kyle Hinson and Anne Worrell and Committee Members, Caroline Chisholm, Mandi Coogle, Miller Jackson and Abby King for leading the way to another fantastic evening of friends, fun and fundraising for awareness and research for mitochondrial […]Read More
Hope Flies in one month – sign up today!
Hope Flies in One Month! Hope Flies® Catch the Cure preparations are in full swing, with volunteers planning a memorable and meaningful event. Co-Chairs, Kyle Hinson and Anne Worrell lead this year’s celebration with passion and dedication to help the mitochondrial disease community. Caroline Chisholm, Mandi Coogle, Miller Jackson and Abby King lend their amazing […]Read More
Stealth BioTherapeutics Shares Promising Data From Mitochondrial Myopathy Trial
July 19, 2017 STEALTH BIOTHERAPEUTICS SHARES PROMISING DATA FROM MITOCHONDRIAL MYOPATHY TRIAL Recently, at the 2017 UMDF Mitochondrial Medicine Symposium, Stealth BioTherapeutics shared very encouraging results from its second clinical trial for primary mitochondrial myopathy, the MMPOWER-2 study. Stealth is a Boston-based biopharmaceutical company developing therapeutics to treat mitochondrial dysfunction; its lead drug under investigation […]Read More
Baby Charlie Gard: Join Statement FMM, UMDF, MitoAction
On July 7, the Foundation for Mitochondrial Medicine, the United Mitochondrial Disease Foundation and MitoAction sent a joint letter to editors of top US daily newspapers in the 10 largest media markets and also to USA Today, The NY Times and the Wall Street Journal regarding the need for further research and awareness for mitochondrial […]Read More
Hope Flies® Auction Supporters Help Hope Fly!
Thank you Auction Supporters! Volunteers are hard at work planning the 2017 Hope Flies® Catch the Cure Auction to be held Friday, September 22, 2017 at the Stave Room. Things are coming together nicely, but we could use some help from our friends! If you have merchandise, a certificate or experience to donate to the […]Read More
Moving the Dial for Pediatric Mitochondrial Disease Patients
Dr. Leon Dure Leads Pediatric Mitochondrial Care at the University of Alabama at Birmingham The Foundation for Mitochondrial Medicine (FMM) is pleased to announce that through its partnership with the University of Alabama at Birmingham (UAB), Dr. Leon Dure is leading a new pediatric mitochondrial disease clinical care program at UAB. In addition to addressing the clinical needs of patients […]Read More
Stealth BioTherapeutics MMPOWER-2 Press Release
Stealth BioTherapeutics MMPOWER-2 Press Release Stealth BioTherapeutics will present top-line data from their MMPOWER-2 Phase 2 continuation trial at the United Mitochondrial Disease Foundation (UMDF) Mitochondrial Medicine Symposium on Thursday, June 29, in Washington, DC at 8:00 a.m. EDT. In attendance will be Laura Stanley, FMM Executive Director, who will report back to […]Read More
SE Mitochondrial Medicine Symposium Highlights Ground-Breaking Research
Southeast Mitochondrial Medicine Symposium Highlights Ground-Breaking Research for Neurologic Diseases In early April, The Foundation for Mitochondrial Medicine paired with the other leading mitochondrial disease research/educational organizations, the United Mitochondrial Disease Foundation (UMDF), to jointly sponsor the Southeast Regional Symposium on Mitochondrial Medicine in Birmingham, Ala. The symposium: “Understanding Mitochondrial Disease and Mitochondrial Dysfunction: Opportunities […]Read More