Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine
23rd of October 2017

Stealth BioTherapuetics clinical trials in mitochondrial disorders Update

The following is a summary of a live presentation offered through joint collaboration with UMDF, MitoAction and the Foundation for Mitochondrial Medicine to the mitochondrial disease patient and family community on August 11, 2017. Stealth BioTherapeutics’ CEO Reenie McCarthy and Chief Clinical Development Officer Jim Carr, Pharm.D., presented an update on Stealth’s clinical trials in […]

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1st of October 2017

Hope Was Flying on September 22nd!

8th Annual Hope Flies Catch the Cure a Smashing Success Thank you to Hope Flies® Catch the Cure event co-chairs, Kyle Hinson and Anne Worrell and Committee Members, Caroline Chisholm, Mandi Coogle, Miller Jackson and Abby King for leading the way to another fantastic evening of friends, fun and fundraising for awareness and research for mitochondrial […]

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26th of July 2017

Hope Flies in one month – sign up today!

Hope Flies in One Month! Hope Flies® Catch the Cure preparations are in full swing, with volunteers planning a memorable and meaningful event. Co-Chairs, Kyle Hinson and Anne Worrell lead this year’s celebration with passion and dedication to help the mitochondrial disease community. Caroline Chisholm, Mandi Coogle, Miller Jackson and Abby King lend their amazing […]

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18th of July 2017

Stealth BioTherapeutics Shares Promising Data From Mitochondrial Myopathy Trial

July 19, 2017 STEALTH BIOTHERAPEUTICS SHARES PROMISING DATA FROM MITOCHONDRIAL MYOPATHY TRIAL Recently, at the 2017 UMDF Mitochondrial Medicine Symposium, Stealth BioTherapeutics shared very encouraging results from its second clinical trial for primary mitochondrial myopathy, the MMPOWER-2 study. Stealth is a Boston-based biopharmaceutical company developing therapeutics to treat mitochondrial dysfunction; its lead drug under investigation […]

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10th of July 2017

Baby Charlie Gard: Join Statement FMM, UMDF, MitoAction

On July 7, the Foundation for Mitochondrial Medicine, the United Mitochondrial Disease Foundation and MitoAction sent a joint letter to editors of top US daily newspapers in the 10 largest media markets and also to USA Today, The NY Times and the Wall Street Journal regarding the need for further research and awareness for mitochondrial […]

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28th of June 2017

Hope Flies® Auction Supporters Help Hope Fly!

Thank you Auction Supporters! Volunteers are hard at work planning the 2017 Hope Flies® Catch the Cure Auction to be held Friday, September 22, 2017 at the Stave Room. Things are coming together nicely, but we could use some help from our friends!  If you have merchandise, a certificate or experience to donate to the […]

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27th of June 2017

Moving the Dial for Pediatric Mitochondrial Disease Patients

Dr. Leon Dure Leads Pediatric Mitochondrial Care at the University of Alabama at Birmingham The Foundation for Mitochondrial Medicine (FMM) is pleased to announce that through its partnership with the University of Alabama at Birmingham (UAB), Dr. Leon Dure is leading a new pediatric mitochondrial disease clinical care program at UAB. In addition to addressing the clinical needs of patients […]

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23rd of June 2017

Stealth BioTherapeutics MMPOWER-2 Press Release

  Stealth BioTherapeutics MMPOWER-2 Press Release   Stealth BioTherapeutics will present top-line data from their MMPOWER-2 Phase 2 continuation trial at the United Mitochondrial Disease Foundation (UMDF) Mitochondrial Medicine Symposium on Thursday, June 29, in Washington, DC at 8:00 a.m. EDT. In attendance will be Laura Stanley, FMM Executive Director, who will report back to […]

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20th of May 2017

Hope Flies® Catch the Cure 2017

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9th of May 2017

SE Mitochondrial Medicine Symposium Highlights Ground-Breaking Research

Southeast Mitochondrial Medicine Symposium Highlights Ground-Breaking Research for Neurologic Diseases In early April, The Foundation for Mitochondrial Medicine paired with the other leading mitochondrial disease research/educational organizations, the United Mitochondrial Disease Foundation (UMDF), to jointly sponsor the Southeast Regional Symposium on Mitochondrial Medicine in Birmingham, Ala. The symposium: “Understanding Mitochondrial Disease and Mitochondrial Dysfunction:  Opportunities […]

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