Foundation for Mitochondrial Medicine


Foundation for Mitochondrial Medicine
21st of December 2018


Five weeks have passed since my back fusion. While my legs seem far more stable than before, my ankles swell like baseballs by day’s end. Ice packs might help, but since I just noticed the problem a few days ago, I haven’t opened my freezer yet. So, when friends ask if the surgery helped, I […]

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14th of December 2018

Through it All

As I sat with my lap top, trying to write, choir members chatted on the sofas behind me in the coffee shop nook of the John’s Creek United Methodist Church. With the afternoon rehearsal finished, conversation helped pass the time before the Holiday Pops concert began. Dressed in bright holiday sweaters, sipping coffee, I envied the […]

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12th of December 2018

Exciting News from FMM & UMDF!

Foundation for Mitochondrial Medicine and United Mitochondrial Disease Foundation combine to provide a larger platform for the patient community. Read the press release and fact sheet below. All are invited to a conference call on Thursday, December 13, 2018, at noon EST to discuss this exciting announcement.    To call in, please dial: 1-650-479-3207 and use Access Code: 664 […]

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29th of November 2018

Fully and Free

Week three post-surgery challenges me. Initial hurdles past, I feel caught between rest and forward momentum. After laying around in bed for two weeks, the time out begins to feel slothful, purposeless, and plain boring. But considering I’m only two weeks out from my ninth orthopedic surgery, I have much to celebrate. First and foremost, […]

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13th of November 2018

A Better Way

White compression socks stretch up my thighs. A blood pressure cup tightens on my left arm, causing a twinge of pain in the IV hanging off of my left hand. Obnoxious yellow socks warm my feet while a blood oxygen monitor hangs from my right middle finger. If you haven’t guessed by now, I’m writing […]

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6th of November 2018

And So It Begins

I just did it. I said, “Alexa, play Christmas music, please.” In all fairness, my first husband died 22 years ago today and a bad virus has kept me from caring for my grandson this week. Since I’ve been planning on helping with him for over five months now, keeping my distance has me a […]

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1st of November 2018

Mitochondrial Disease Advocacy Groups Launch Mitochondrial Care Network (MCN)

ATLANTA, October 30, 2018 – The Foundation for Mitochondrial Medicine, MitoAction, the United Mitochondrial Disease Foundation, and the Mitochondrial Medicine Society announce the formation of a first-of-its-kind Mitochondrial Care Network. The goals of this collaborative effort on behalf of patient advocacy groups and the Mitochondrial Medicine Society include formally unifying clinicians who provide medical care to […]

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24th of October 2018

Getting Back Up

In the past month, I’ve spent more time with my grandson than in the last year. In that time, I watched him evolve from a crawler to a confident walker. While tiny in stature, only a few days after his birthday last week, he climbed down ten front porch steps, navigated my hilly, acorn-filled sidewalk and […]

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15th of October 2018

Music, Sweet Music

My heart is bursting. Not only is it my 49thbirthday, I’m sitting in my son’s high school chorus room, Susan Schreer Davis, contributing writer and Voice of Hope for all those seeking inspiration in their day-to-day lives. Follow along on social media and waiting to practice a two-part piano accompaniment to a beautiful song […]

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9th of October 2018

Ninth Annual Hope Flies® Catch the Cure Event Raises Critical Funds for Mitochondrial Disease Research & Patient Programs

October 2, 2018 — The Foundation for Mitochondrial Medicine held its ninth celebration of Hope Flies® Catch the Cure on September 21 at The Fairmont event venue in Atlanta.  Approximately 250 guests enjoyed the event, including open bars, a buffet dinner, silent and live auctions, raffles and dancing to live music by Shimmer.  The live auction […]

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