Stealth BioTherapeutics Shares Promising Data From Mitochondrial Myopathy Trial
July 19, 2017 STEALTH BIOTHERAPEUTICS SHARES PROMISING DATA FROM MITOCHONDRIAL MYOPATHY TRIAL Recently, at the 2017 UMDF Mitochondrial Medicine Symposium, Stealth BioTherapeutics shared very encouraging results from its second clinical trial for primary mitochondrial myopathy, the MMPOWER-2 study. Stealth is a Boston-based biopharmaceutical company developing therapeutics to treat mitochondrial dysfunction; its lead drug under investigation […]Read More
“Charlie Gard Case Captures Vast and Unmet Needs of People with Mitochondrial Disease..” 7/13/17
FMM, UMDF, and MitoAction release joint Statement Coverage The Foundation for Mitochondrial Medicine (FMM), United Mitochondrial Disease Foundation (UMDF), and MitoAction together issued a statement July 7 regarding the very difficult and complicated circumstances facing the Gaud Family. The Mitochondrial Medicine Society’s article published July 13 references this statement. click the link below to read. […]Read More
Let’s help Brave Teen’s Hope Fly
Brave Arizona teen with mitochondrial disease, Jacob Priestly, wants just one thing for his birthday later this summer. 100,000 cards. Let’s help Jacob’s Hope Fly with cards from the FMM community. To learn more about Jacob’s birthday wish, click the following stories from the Atlanta Journal Constitution and Atlanta’s 11Alive. http://www.ajc.com/lifestyles/boy-with-terminal-illness-wishes-for-100-000-birthday-cards/HkFQ3PAi4ofLN3fqfFOkxJ/ http://www.11alive.com/features/queen-creek-boy-with-terminal-disease-only-has-one-wish-100000-birthday-cards/451469615 Send birthday wishes to: […]Read More
Hope Flies® Auction Donors help Hope Fly!
Volunteers are hard at work planning the 2017 Hope Flies® Catch the Cure Auction to be held Friday, September 22, 2017 at the Stave Room. Things are coming together nicely, but we could use some help from our friends! If you have merchandise, a certificate or experience to donate to the 2017 auction, FMM kindly […]Read More
Eighth Annual Hope Flies® Catch the Cure
Eighth Annual Hope Flies® Catch the Cure Event Scheduled Friday, September 22, 2017 ATLANTA, June 21, 2017– The Foundation for Mitochondrial Medicine will hold its eighth annual celebration of Hope Flies: Catch the Cure on Friday, September 22 at the Stave Room at American Spirit Works. The event will feature a seated dinner, open bar, […]Read More
Hope Flies with the Braves 2017 was a GREAT day!
Hope Flies with the Braves 2017 was a Home Run! FMM friends and family gathered at the beautiful new SunTrust Park in Atlanta on Sunday, June 11th. Hope Flies with the Braves 2017 sold out in record time, and we were proud to host over 100 guests at this year’s event. Thank you to our friends […]Read More
SE Mitochondrial Medicine Symposium Highlights Ground-Breaking Research
Southeast Mitochondrial Medicine Symposium Highlights Ground-Breaking Research for Neurologic Diseases In early April, The Foundation for Mitochondrial Medicine paired with the other leading mitochondrial disease research/educational organizations, the United Mitochondrial Disease Foundation (UMDF), to jointly sponsor the Southeast Regional Symposium on Mitochondrial Medicine in Birmingham, Ala. The symposium: “Understanding Mitochondrial Disease and Mitochondrial Dysfunction: Opportunities […]Read More
Plans under way for 8th Annual Catch the Cure!
8th Annual Catch the Cure, Friday, September 22, 2017 The Foundation for Mitochondrial Medicine (FMM) will host the 8thAnnual Hope Flies Catch the Cure at the Stave Room, American Spirit Works, in Atlanta on Friday, September 22. Thank you to the 2017 Event Co-Chairs, Kyle Hinson & Anne Worrell, for graciously leading this year’s celebration with passion […]Read More
Our Hope Flies for Rare Disease Day!
FMM Shines the spotlight on Rare Disease Day 2017 Throughout the month of February we raised awareness and funds in honor of Rare Disease Day on February 28. Thank you to all our #give28on28 supporters far and wide for being a special part of our month of stories and awareness. If you would like to join […]Read More