Foundation for Mitochondrial Medicine

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    Foundation for Mitochondrial Medicine
    20th of February 2018

    The Great Big Why

    The nurse sounded as uninterested as my sister at a football game, “You need the results of a recent EMG?” “Yes…” “From last week?” “Yeeesss…” “The results are normal.” With that, all hopes of a concrete answer sank into the dark abyss of why. For over a decade, medical professionals have offered opinions on my […]

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    13th of February 2018

    I’m waiting

    I’m waiting—waiting for test results that won’t be available until tomorrow. I sought refuge in a favorite Starbucks, only to learn a watermain break forced it to close. I tried my sister’s house, but her husband has a cough. So, I drove ten minutes more and now sit in a local coffee dive with a […]

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    6th of February 2018

    I need hope

    I need hope. I clamber for hope. Fight for hope. Search for hope. Sometimes it wells up with ease. Like when the sun warms my face. Or when my cat’s whiskers brush against my cheek. Or when I indulge in strawberries dipped in chocolate peanut butter fondue. Life’s simple moments can stir a sweet peace […]

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    26th of January 2018

    #Give28on28 for Rare Disease Day – Learn More

    via GIPHY What is #Give28on28? The Foundation for Mitochondrial Medicine launches its annual fundraising campaign #Give28on28 to mark Rare Disease Day. Our goal is to have each supporter have 28 friends donate $28 by February 28th. It’s easy to help and it’s all via social media. You can help by posting today and making posts throughout the […]

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    8th of January 2018

    Mitochondrial Organizations Launch Pilot Phase of the Mitochondrial Care Network

    Major mitochondrial disease organizations join forces to create Mitochondrial Care Network to improve standard of care for those with disease The Foundation for Mitochondrial Medicine (FMM), MitoAction, the Mitochondrial Medicine Society (MMS), and the United Mitochondrial Disease Foundation (UMDF) jointly unveil an revolutionary new initiative to create a Mitochondrial Care Network (Network). The priorities for […]

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    21st of December 2017

    Hope Flies® with Gratitude for the Holidays

    Hope Flies® with Gratitude for the Holidays During this holiday season, we reflect back on the year with gratitude for all of our volunteers, supporters, families and friends. Many thanks to each and every one of you for your contributions of time, energy and resources, helping us on our journey to raising awareness for mitochondrial […]

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    1st of October 2017

    Hope Was Flying on September 22nd!

    8th Annual Hope Flies Catch the Cure a Smashing Success Thank you to Hope Flies® Catch the Cure event co-chairs, Kyle Hinson and Anne Worrell and Committee Members, Caroline Chisholm, Mandi Coogle, Miller Jackson and Abby King for leading the way to another fantastic evening of friends, fun and fundraising for awareness and research for mitochondrial […]

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    26th of July 2017

    Hope Flies in one month – sign up today!

    Hope Flies in One Month! Hope Flies® Catch the Cure preparations are in full swing, with volunteers planning a memorable and meaningful event. Co-Chairs, Kyle Hinson and Anne Worrell lead this year’s celebration with passion and dedication to help the mitochondrial disease community. Caroline Chisholm, Mandi Coogle, Miller Jackson and Abby King lend their amazing […]

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    18th of July 2017

    Stealth BioTherapeutics Shares Promising Data From Mitochondrial Myopathy Trial

    July 19, 2017 STEALTH BIOTHERAPEUTICS SHARES PROMISING DATA FROM MITOCHONDRIAL MYOPATHY TRIAL Recently, at the 2017 UMDF Mitochondrial Medicine Symposium, Stealth BioTherapeutics shared very encouraging results from its second clinical trial for primary mitochondrial myopathy, the MMPOWER-2 study. Stealth is a Boston-based biopharmaceutical company developing therapeutics to treat mitochondrial dysfunction; its lead drug under investigation […]

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    13th of July 2017

    “Charlie Gard Case Captures Vast and Unmet Needs of People with Mitochondrial Disease..” 7/13/17

    FMM, UMDF, and MitoAction release joint Statement Coverage The Foundation for Mitochondrial Medicine (FMM), United Mitochondrial Disease Foundation (UMDF), and MitoAction together issued a statement July 7 regarding the very difficult  and complicated circumstances facing the Gaud Family. The Mitochondrial Medicine Society’s article published July 13 references this statement. click the link below to read. […]

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