Stealth BioTherapuetics clinical trials in mitochondrial disorders Update
The following is a summary of a live presentation offered through joint collaboration with UMDF, MitoAction and the Foundation for Mitochondrial Medicine to the mitochondrial disease patient and family community on August 11, 2017. Stealth BioTherapeutics’ CEO Reenie McCarthy and Chief Clinical Development Officer Jim Carr, Pharm.D., presented an update on Stealth’s clinical trials in […]Read More
Hope Was Flying on September 22nd!
8th Annual Hope Flies Catch the Cure a Smashing Success Thank you to Hope Flies® Catch the Cure event co-chairs, Kyle Hinson and Anne Worrell and Committee Members, Caroline Chisholm, Mandi Coogle, Miller Jackson and Abby King for leading the way to another fantastic evening of friends, fun and fundraising for awareness and research for mitochondrial […]Read More
Hope Flies in one month – sign up today!
Hope Flies in One Month! Hope Flies® Catch the Cure preparations are in full swing, with volunteers planning a memorable and meaningful event. Co-Chairs, Kyle Hinson and Anne Worrell lead this year’s celebration with passion and dedication to help the mitochondrial disease community. Caroline Chisholm, Mandi Coogle, Miller Jackson and Abby King lend their amazing […]Read More
Stealth BioTherapeutics Shares Promising Data From Mitochondrial Myopathy Trial
July 19, 2017 STEALTH BIOTHERAPEUTICS SHARES PROMISING DATA FROM MITOCHONDRIAL MYOPATHY TRIAL Recently, at the 2017 UMDF Mitochondrial Medicine Symposium, Stealth BioTherapeutics shared very encouraging results from its second clinical trial for primary mitochondrial myopathy, the MMPOWER-2 study. Stealth is a Boston-based biopharmaceutical company developing therapeutics to treat mitochondrial dysfunction; its lead drug under investigation […]Read More
“Charlie Gard Case Captures Vast and Unmet Needs of People with Mitochondrial Disease..” 7/13/17
FMM, UMDF, and MitoAction release joint Statement Coverage The Foundation for Mitochondrial Medicine (FMM), United Mitochondrial Disease Foundation (UMDF), and MitoAction together issued a statement July 7 regarding the very difficult and complicated circumstances facing the Gaud Family. The Mitochondrial Medicine Society’s article published July 13 references this statement. click the link below to read. […]Read More
Let’s help Brave Teen’s Hope Fly
Brave Arizona teen with mitochondrial disease, Jacob Priestly, wants just one thing for his birthday later this summer. 100,000 cards. Let’s help Jacob’s Hope Fly with cards from the FMM community. To learn more about Jacob’s birthday wish, click the following stories from the Atlanta Journal Constitution and Atlanta’s 11Alive. http://www.ajc.com/lifestyles/boy-with-terminal-illness-wishes-for-100-000-birthday-cards/HkFQ3PAi4ofLN3fqfFOkxJ/ http://www.11alive.com/features/queen-creek-boy-with-terminal-disease-only-has-one-wish-100000-birthday-cards/451469615 Send birthday wishes to: […]Read More
Hope Flies® Auction Donors help Hope Fly!
Volunteers are hard at work planning the 2017 Hope Flies® Catch the Cure Auction to be held Friday, September 22, 2017 at the Stave Room. Things are coming together nicely, but we could use some help from our friends! If you have merchandise, a certificate or experience to donate to the 2017 auction, FMM kindly […]Read More
Eighth Annual Hope Flies® Catch the Cure
Eighth Annual Hope Flies® Catch the Cure Event Scheduled Friday, September 22, 2017 ATLANTA, June 21, 2017– The Foundation for Mitochondrial Medicine will hold its eighth annual celebration of Hope Flies: Catch the Cure on Friday, September 22 at the Stave Room at American Spirit Works. The event will feature a seated dinner, open bar, […]Read More
Hope Flies with the Braves 2017 was a GREAT day!
Hope Flies with the Braves 2017 was a Home Run! FMM friends and family gathered at the beautiful new SunTrust Park in Atlanta on Sunday, June 11th. Hope Flies with the Braves 2017 sold out in record time, and we were proud to host over 100 guests at this year’s event. Thank you to our friends […]Read More