Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine
28th of June 2018

Hope Flies Health Series-Patient Education Forum

HOPE FLIES HEALTH SERIES-PATIENT EDUCATION FORUM Save the Date! Saturday, August 11, 2018 from 9-12pm Rich Auditorium, Piedmont Hospital, Atlanta, Georgia Auditorium located in 77 Building of Piedmont Hospital’s Buckhead Campus 1968 Peachtree Road NW – Atlanta, GA Admission Complimentary Come join an interactive panel discussion on mitochondrial disease, news, treatments and practical approaches.  Hear from […]

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Fun Indoors

Instead of sitting comfortably at my kitchen table as I type, I’m leaning against the wall of a small chapel in the church where my son works. While I Susan Schreer Davis, contributing writer and Voice of Hope for all those seeking inspiration in their day-to-day lives. Follow along each week at www.hopeflies.org, and on […]

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19th of June 2018

Mito Café Call TODAY! Slides Here

Mito Café Call Information Date: Tuesday, June 19 Time: 12pm EDT / 9am PDT Call:866-414-2828; Participant code: 017921# Topic: How Patients Can Partner to Advance Treatments—The Patient Voice in Clinical Trials Guest Speaker: Mindy Leffler, Casimir Trials Learn more about clinical trials, how the typically work, benefits and challenges.  Engage in an interactive discussion around desired […]

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1st of June 2018

Not Giving In

Pain. Susan Schreer Davis, contributing writer and Voice of Hope for all those seeking inspiration in their day-to-day lives. Follow along each week at www.hopeflies.org, and on social media. Some days it pops up like an afternoon thunderstorm. On others, it settles in my bones, unwilling to loosen its grip. A recent bout of discomfort […]

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17th of May 2018

All is Well

Susan Schreer Davis, contributing writer and Voice of Hope for all those seeking inspiration in their day-to-day lives. Follow along each week at www.hopeflies.org, and on social media. I woke to a quiet home this morning. Recent house guests left with their Pomeranian yesterday and Lily, my parent’s King Charles Cavalier, went home. While hosting added […]

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8th of May 2018

Part of Me

Susan Schreer Davis, contributing writer and Voice of Hope for all those seeking inspiration in their day-to-day lives. Follow along each week at www.hopeflies.org, and on social media. My niece, Jessica, and I stood on opposite sides of Bonnie’s bed. There, we sang as she took her final breath. In her last year of nursing […]

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1st of May 2018

Not Alone

NOT ALONE Susan Schreer Davis, contributing writer and Voice of Hope for all those seeking inspiration in their day-to-day lives. Follow along each week at www.hopeflies.org, and on social media. A pirate patch covers my left eye. Recent pain warned of changes, but I ignored it. Then it happened, my up-close prism lenses failed. Instead […]

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19th of April 2018

April 11th

Share List I sent the text to my nephew just to be ridiculous, “So, tomorrow’s my half birthday. Can’t Susan Schreer Davis, contributing writer and Voice of Hope for all those seeking inspiration in their day-to-day lives. Follow along each week at www.hopeflies.org, and on social media. wait for that vanilla cupcake you promised.” My […]

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5th of April 2018

Losing My Mind

Share List Last week I shared how fifteen months of medical mayhem surrounded the era in which my son and I received our mitochondrial disease Susan Schreer Davis, contributing writer and Voice of Hope for all those seeking inspiration in their day-to-day lives. Follow along each week at www.hopeflies.org, and on social media. diagnosis. The […]

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29th of March 2018

The Diagnosis

I remember the day well. The day we received my sixteen-year-old son’s muscle biopsy results. Gathered in the prominent doctor’s office, we listened as a physician assistant explained life within the confines of mitochondrial disease. Susan Schreer Davis, contributing writer and Voice of Hope for the mito community and all those seeking inspiration in their […]

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