Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine
23rd of October 2017

Stealth BioTherapuetics clinical trials in mitochondrial disorders Update

The following is a summary of a live presentation offered through joint collaboration with UMDF, MitoAction and the Foundation for Mitochondrial Medicine to the mitochondrial disease patient and family community on August 11, 2017. Stealth BioTherapeutics’ CEO Reenie McCarthy and Chief Clinical Development Officer Jim Carr, Pharm.D., presented an update on Stealth’s clinical trials in […]

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1st of October 2017

Hope Was Flying on September 22nd!

8th Annual Hope Flies Catch the Cure a Smashing Success Thank you to Hope Flies® Catch the Cure event co-chairs, Kyle Hinson and Anne Worrell and Committee Members, Caroline Chisholm, Mandi Coogle, Miller Jackson and Abby King for leading the way to another fantastic evening of friends, fun and fundraising for awareness and research for mitochondrial […]

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18th of September 2017

Global Mitochondrial Disease Awareness Week 9/17

SHARE THE WAYS MITOCHONDRIA MATTER THIS WEEK September 17-23 is Global Mitochondrial Disease Awareness Week. Mitochondria are in every cell of our body, except red blood cells, and are tiny cellular powerhouses, essential for energy creation in organ systems, like brain, heart and muscles. Approximately 1 in 2,500 adults, teens and children are affected, making […]

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10th of July 2017

Baby Charlie Gard: Join Statement FMM, UMDF, MitoAction

On July 7, the Foundation for Mitochondrial Medicine, the United Mitochondrial Disease Foundation and MitoAction sent a joint letter to editors of top US daily newspapers in the 10 largest media markets and also to USA Today, The NY Times and the Wall Street Journal regarding the need for further research and awareness for mitochondrial […]

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Amazon Prime Day – Select FMM at Amazon Smile

Attention Shoppers – – Amazon Prime Day is upon us, so let the deals begin! Visit Amazon Smile and chose the Foundation for Mitochondrial Medicine as your charity beneficiary. When you shop Amazon throughout the year, a portion is donated back to FMM. What a great way friends can help Hope Fly. Thank you. Click here […]

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27th of June 2017

Moving the Dial for Pediatric Mitochondrial Disease Patients

Dr. Leon Dure Leads Pediatric Mitochondrial Care at the University of Alabama at Birmingham The Foundation for Mitochondrial Medicine (FMM) is pleased to announce that through its partnership with the University of Alabama at Birmingham (UAB), Dr. Leon Dure is leading a new pediatric mitochondrial disease clinical care program at UAB. In addition to addressing the clinical needs of patients […]

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23rd of June 2017

Stealth BioTherapeutics MMPOWER-2 Press Release

  Stealth BioTherapeutics MMPOWER-2 Press Release   Stealth BioTherapeutics will present top-line data from their MMPOWER-2 Phase 2 continuation trial at the United Mitochondrial Disease Foundation (UMDF) Mitochondrial Medicine Symposium on Thursday, June 29, in Washington, DC at 8:00 a.m. EDT. In attendance will be Laura Stanley, FMM Executive Director, who will report back to […]

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Let’s help Brave Teen’s Hope Fly

Brave Arizona teen with mitochondrial disease, Jacob Priestly, wants just one thing for his birthday later this summer. 100,000 cards. Let’s help Jacob’s Hope Fly with cards from the FMM community. To learn more about Jacob’s birthday wish, click the following stories from the Atlanta Journal Constitution and Atlanta’s 11Alive. http://www.ajc.com/lifestyles/boy-with-terminal-illness-wishes-for-100-000-birthday-cards/HkFQ3PAi4ofLN3fqfFOkxJ/ http://www.11alive.com/features/queen-creek-boy-with-terminal-disease-only-has-one-wish-100000-birthday-cards/451469615 Send birthday wishes to: […]

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Hope Flies® Auction Donors help Hope Fly!

Volunteers are hard at work planning the 2017 Hope Flies® Catch the Cure Auction to be held Friday, September 22, 2017 at the Stave Room. Things are coming together nicely, but we could use some help from our friends!  If you have merchandise, a certificate or experience to donate to the 2017 auction, FMM kindly […]

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20th of June 2017

Eighth Annual Hope Flies® Catch the Cure

Eighth Annual Hope Flies® Catch the Cure Event Scheduled Friday, September 22, 2017 ATLANTA, June 21, 2017– The Foundation for Mitochondrial Medicine will hold its eighth annual celebration of Hope Flies: Catch the Cure on Friday, September 22 at the Stave Room at American Spirit Works.  The event will feature a seated dinner, open bar, […]

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