Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine
1st of November 2018

Mitochondrial Disease Advocacy Groups Launch Mitochondrial Care Network (MCN)

ATLANTA, October 30, 2018 – The Foundation for Mitochondrial Medicine, MitoAction, the United Mitochondrial Disease Foundation, and the Mitochondrial Medicine Society announce the formation of a first-of-its-kind Mitochondrial Care Network. The goals of this collaborative effort on behalf of patient advocacy groups and the Mitochondrial Medicine Society include formally unifying clinicians who provide medical care to […]

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9th of October 2018

Ninth Annual Hope Flies® Catch the Cure Event Raises Critical Funds for Mitochondrial Disease Research & Patient Programs

October 2, 2018 — The Foundation for Mitochondrial Medicine held its ninth celebration of Hope Flies® Catch the Cure on September 21 at The Fairmont event venue in Atlanta.  Approximately 250 guests enjoyed the event, including open bars, a buffet dinner, silent and live auctions, raffles and dancing to live music by Shimmer.  The live auction […]

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21st of February 2018

Hope Flies with Fashion on Rare Disease Day!

Share List Draper James Atlanta hosts FMM on Rare Disease Day Y’all, don’t miss this fun event for a great cause. Please join the Foundation for Mitochondrial Medicine on Wednesday, February 28, 11-2 at the new Draper James boutique at the Shops Around Lenox in Atlanta. Come check out southern style at its best created […]

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8th of January 2018

Mitochondrial Organizations Launch Pilot Phase of the Mitochondrial Care Network

Major mitochondrial disease organizations join forces to create Mitochondrial Care Network to improve standard of care for those with disease The Foundation for Mitochondrial Medicine (FMM), MitoAction, the Mitochondrial Medicine Society (MMS), and the United Mitochondrial Disease Foundation (UMDF) jointly unveil an revolutionary new initiative to create a Mitochondrial Care Network (Network). The priorities for […]

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18th of September 2017

Global Mitochondrial Disease Awareness Week 9/17

SHARE THE WAYS MITOCHONDRIA MATTER THIS WEEK September 17-23 is Global Mitochondrial Disease Awareness Week. Mitochondria are in every cell of our body, except red blood cells, and are tiny cellular powerhouses, essential for energy creation in organ systems, like brain, heart and muscles. Approximately 1 in 2,500 adults, teens and children are affected, making […]

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24th of July 2017

UMDF, MitoAction, Foundation for Mitochondrial Medicine Statement Charlie Gard

July 28, 2017. Our heartfelt condolences to the family and friends of Charlie Gard. Rest in peace. July 24, 2017. The thoughts and prayers of the entire mitochondrial disease community are with Charlie Gard and his mother and father, Chris Gard and Connie Yates. They have decided to withdraw their request to have little Charlie […]

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18th of July 2017

Stealth BioTherapeutics Shares Promising Data From Mitochondrial Myopathy Trial

Share List July 19, 2017 STEALTH BIOTHERAPEUTICS SHARES PROMISING DATA FROM MITOCHONDRIAL MYOPATHY TRIAL Recently, at the 2017 UMDF Mitochondrial Medicine Symposium, Stealth BioTherapeutics shared very encouraging results from its second clinical trial for primary mitochondrial myopathy, the MMPOWER-2 study. Stealth is a Boston-based biopharmaceutical company developing therapeutics to treat mitochondrial dysfunction; its lead drug […]

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13th of July 2017

“Charlie Gard Case Captures Vast and Unmet Needs of People with Mitochondrial Disease..” 7/13/17

FMM, UMDF, and MitoAction release joint Statement Coverage The Foundation for Mitochondrial Medicine (FMM), United Mitochondrial Disease Foundation (UMDF), and MitoAction together issued a statement July 7 regarding the very difficult  and complicated circumstances facing the Gaud Family. The Mitochondrial Medicine Society’s article published July 13 references this statement. click the link below to read. […]

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27th of June 2017

Moving the Dial for Pediatric Mitochondrial Disease Patients

Dr. Leon Dure Leads Pediatric Mitochondrial Care at the University of Alabama at Birmingham The Foundation for Mitochondrial Medicine (FMM) is pleased to announce that through its partnership with the University of Alabama at Birmingham (UAB), Dr. Leon Dure is leading a new pediatric mitochondrial disease clinical care program at UAB. In addition to addressing the clinical needs of patients […]

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23rd of June 2017

Stealth BioTherapeutics MMPOWER-2 Press Release

  Stealth BioTherapeutics MMPOWER-2 Press Release   Stealth BioTherapeutics will present top-line data from their MMPOWER-2 Phase 2 continuation trial at the United Mitochondrial Disease Foundation (UMDF) Mitochondrial Medicine Symposium on Thursday, June 29, in Washington, DC at 8:00 a.m. EDT. In attendance will be Laura Stanley, FMM Executive Director, who will report back to […]

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