Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine
7th of April 2017
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Thought leaders in mitochondrial disease & science in Birmingham #SEmitosymposium

Thought leaders in mitochondrial disease, science and organizational leadership meet together in Birmingham April on April 7th  for the Mitochondrial Medicine Southeast Symposium. On April 8th, patient families and advocates come together for learning and resource sharing. FMM and UMDF are proud to partner together to provide this opportunity for learning and sharing.   #SEmitosymposium […]

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28th of February 2017
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Our Hope Flies for Rare Disease Day!

FMM Shines the spotlight on Rare Disease Day 2017 Throughout the month of February we raised awareness and funds in honor of Rare Disease Day on February 28. Thank you to all our #give28on28 supporters far and wide for being a special part of our month of stories and awareness. If you would like to join […]

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18th of February 2017
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#give28on28 stories – Abby

Stand with FMM in support of Rare Disease Day (Feb. 28), an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Share stories and #give28on28 If you live  near the Brood Brook, Connecticut area, check out the 2017 Walk for Abby! Click here for more info.       […]

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16th of December 2016
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Science on the horizon

FMM is proud to help support research for a non-invasive blood test for bioenergetic health at University of Alabama at Birmingham (UAB) Mitochondrial Medicine Laboratories in concert with Agilent Technologies, formally Seahorse Bioscience.  Exciting work is taking place, laying the framework for a future CLIA* certified mitochondrial clinical laboratory featuring state-of-the-art blood tests, including a […]

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15th of December 2016
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Stealth BioTherapeutics 2016 presentation

12/6/16 Stealth BioTherapeutics/MitoAction/UMDF/FMM Summary This summer, Stealth BioTherapeutics (Stealth BT) shared preliminary positive data from the MMPOWER study. The study purpose was to evaluate safety and efficacy of elamipretide (previously known as Bendavia) in adults with primary mitochondrial myopathy and genetically confirmed mitochondrial disease. Mitochondrial myopathy is primarily characterized by muscle weakness, fatigue, and exercise […]

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8th of December 2016
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Day 3 – Every Story is Unique

The mitochondria represent the most complicated enzyme system in the body, requiring over 1,000 genes to function properly.  With so many genes, patients can present in hundreds of ways. Mitochondrial disease can appear at any age. For some it appears at birth. For others it develops over time. Using the “power plant analogy,” since the mitochondria are […]

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#20daysofglow – all December

Friends, This month we are excited to share stories and updates as our Hope Flies for the Holidays. This time of the year makes all of us take stock in what’s important.  We close the year with a focus on loved ones, family, and friends and at the same time, we build hopes and dreams […]

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7th of December 2016
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The Fireflyer Newsletter – December

  Winter 2016 12/6/16 Noon EST teleconference for Mitochondrial Myopathy clinical trial discussion Mitochondrial Myopathy research teleconference Tuesday, Dec. 6th at Noon, EST.   This summer, Stealth BioTherapeutics (Stealth BT) shared preliminary positive data from the MMPOWER study. Study purpose was to evaluate safety and efficacy of elamipretide (previously known as Bendavia) in adults with […]

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18th of November 2016
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Support FMM this Holiday Season

Please Support FMM this holiday Season FMM’s mission is to accelerate the development of the most promising treatments and cures for the many forms of mitochondrial disease. As we continue our quest to fund cures and fuel connections, we thank our friends and supporters who make it all possible. Every donation – large or small […]

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17th of November 2016
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Mitochondrial Myopathy Clinical Trial teleconference

12/6/2016 teleconference discussion of data from Stealth BioTherapeutics’ Mitochondrial Myopathy clinical trial. This summer, Stealth BioTherapeutics (Stealth BT) shared preliminary positive data from the MMPOWER study. The study purpose was to evaluate safety and efficacy of elamipretide (previously known as Bendavia) in adults with primary mitochondrial myopathy and genetically confirmed mitochondrial disease. Mitochondrial myopathy is primarily […]

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