Global Mitochondrial Disease Awareness Week 9/17
SHARE THE WAYS MITOCHONDRIA MATTER THIS WEEK September 17-23 is Global Mitochondrial Disease Awareness Week. Mitochondria are in every cell of our body, except red blood cells, and are tiny cellular powerhouses, essential for energy creation in organ systems, like brain, heart and muscles. Approximately 1 in 2,500 adults, teens and children are affected, making […]
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Hope Flies in one month – sign up today!
Hope Flies in One Month! Hope Flies® Catch the Cure preparations are in full swing, with volunteers planning a memorable and meaningful event. Co-Chairs, Kyle Hinson and Anne Worrell lead this year’s celebration with passion and dedication to help the mitochondrial disease community. Caroline Chisholm, Mandi Coogle, Miller Jackson and Abby King lend their amazing […]
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UMDF, MitoAction, Foundation for Mitochondrial Medicine Statement Charlie Gard
July 28, 2017. Our heartfelt condolences to the family and friends of Charlie Gard. Rest in peace. July 24, 2017. The thoughts and prayers of the entire mitochondrial disease community are with Charlie Gard and his mother and father, Chris Gard and Connie Yates. They have decided to withdraw their request to have little Charlie […]
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Stealth BioTherapeutics Shares Promising Data From Mitochondrial Myopathy Trial
July 19, 2017 STEALTH BIOTHERAPEUTICS SHARES PROMISING DATA FROM MITOCHONDRIAL MYOPATHY TRIAL Recently, at the 2017 UMDF Mitochondrial Medicine Symposium, Stealth BioTherapeutics shared very encouraging results from its second clinical trial for primary mitochondrial myopathy, the MMPOWER-2 study. Stealth is a Boston-based biopharmaceutical company developing therapeutics to treat mitochondrial dysfunction; its lead drug under investigation […]
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“Charlie Gard Case Captures Vast and Unmet Needs of People with Mitochondrial Disease..” 7/13/17
FMM, UMDF, and MitoAction release joint Statement Coverage The Foundation for Mitochondrial Medicine (FMM), United Mitochondrial Disease Foundation (UMDF), and MitoAction together issued a statement July 7 regarding the very difficult and complicated circumstances facing the Gaud Family. The Mitochondrial Medicine Society’s article published July 13 references this statement. click the link below to read. […]
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Amazon Prime Day – Select FMM at Amazon Smile
Attention Shoppers – – Amazon Prime Day is upon us, so let the deals begin! Visit Amazon Smile and chose the Foundation for Mitochondrial Medicine as your charity beneficiary. When you shop Amazon throughout the year, a portion is donated back to FMM. What a great way friends can help Hope Fly. Thank you. Click here […]
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Moving the Dial for Pediatric Mitochondrial Disease Patients
Dr. Leon Dure Leads Pediatric Mitochondrial Care at the University of Alabama at Birmingham The Foundation for Mitochondrial Medicine (FMM) is pleased to announce that through its partnership with the University of Alabama at Birmingham (UAB), Dr. Leon Dure is leading a new pediatric mitochondrial disease clinical care program at UAB. In addition to addressing the clinical needs of patients […]
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Stealth BioTherapeutics MMPOWER-2 Press Release
Stealth BioTherapeutics MMPOWER-2 Press Release Stealth BioTherapeutics will present top-line data from their MMPOWER-2 Phase 2 continuation trial at the United Mitochondrial Disease Foundation (UMDF) Mitochondrial Medicine Symposium on Thursday, June 29, in Washington, DC at 8:00 a.m. EDT. In attendance will be Laura Stanley, FMM Executive Director, who will report back to […]
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Hope Flies® Auction Donors help Hope Fly!
Volunteers are hard at work planning the 2017 Hope Flies® Catch the Cure Auction to be held Friday, September 22, 2017 at the Stave Room. Things are coming together nicely, but we could use some help from our friends! If you have merchandise, a certificate or experience to donate to the 2017 auction, FMM kindly […]
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Eighth Annual Hope Flies® Catch the Cure
Eighth Annual Hope Flies® Catch the Cure Event Scheduled Friday, September 22, 2017 ATLANTA, June 21, 2017– The Foundation for Mitochondrial Medicine will hold its eighth annual celebration of Hope Flies: Catch the Cure on Friday, September 22 at the Stave Room at American Spirit Works. The event will feature a seated dinner, open bar, […]
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