The Thing About Loss
Share List The Thing About Loss Susan Schreer Davis, contributing writer and Voice of Hope for the mito community and all those seeking inspiration in their day-to-day lives. Follow along each week at www.hopeflies.org, and on social media. While perusing Facebook this morning, I read a post by a grieving mom. She lost her young […]
Read MoreI Can’t Imagine
Susan Schreer Davis, contributing writer and Voice of Hope for the mito community and all those seeking inspiration in their day-to-day lives. Follow along each week at www.hopeflies.org, and on social media. “This one looks interesting,” my husband suggested. “Are you sure?” I asked, not wanting to waste time on the wrong movie. “I think […]
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Hope Flies with Fashion on Rare Disease Day!
Share List Draper James Atlanta hosts FMM on Rare Disease Day Y’all, don’t miss this fun event for a great cause. Please join the Foundation for Mitochondrial Medicine on Wednesday, February 28, 11-2 at the new Draper James boutique at the Shops Around Lenox in Atlanta. Come check out southern style at its best created […]
Read MoreThe Great Big Why
Susan Schreer Davis, contributing writer and Voice of Hope for the mito community and all those seeking inspiration in their day-to-day lives. Follow along each week at www.hopeflies.org, and on social media. Share List The nurse sounded as uninterested as my sister at a football game, “You need the results of a recent EMG?” “Yes…” […]
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#Give28on28 for Rare Disease Day – Learn More
via GIPHY What is #Give28on28? The Foundation for Mitochondrial Medicine launches its annual fundraising campaign #Give28on28 to mark Rare Disease Day. Our goal is to have each supporter have 28 friends donate $28 by February 28th. It’s easy to help and it’s all via social media. You can help by posting today and making posts throughout the […]
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Mitochondrial Organizations Launch Pilot Phase of the Mitochondrial Care Network
Major mitochondrial disease organizations join forces to create Mitochondrial Care Network to improve standard of care for those with disease The Foundation for Mitochondrial Medicine (FMM), MitoAction, the Mitochondrial Medicine Society (MMS), and the United Mitochondrial Disease Foundation (UMDF) jointly unveil an revolutionary new initiative to create a Mitochondrial Care Network (Network). The priorities for […]
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Hope Flies® with Gratitude for the Holidays
Hope Flies® with Gratitude for the Holidays During this holiday season, we reflect back on the year with gratitude for all of our volunteers, supporters, families and friends. Many thanks to each and every one of you for your contributions of time, energy and resources, helping us on our journey to raising awareness for mitochondrial […]
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Hope Was Flying on September 22nd!
8th Annual Hope Flies Catch the Cure a Smashing Success Thank you to Hope Flies® Catch the Cure event co-chairs, Kyle Hinson and Anne Worrell and Committee Members, Caroline Chisholm, Mandi Coogle, Miller Jackson and Abby King for leading the way to another fantastic evening of friends, fun and fundraising for awareness and research for mitochondrial […]
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Global Mitochondrial Disease Awareness Week 9/17
SHARE THE WAYS MITOCHONDRIA MATTER THIS WEEK September 17-23 is Global Mitochondrial Disease Awareness Week. Mitochondria are in every cell of our body, except red blood cells, and are tiny cellular powerhouses, essential for energy creation in organ systems, like brain, heart and muscles. Approximately 1 in 2,500 adults, teens and children are affected, making […]
Read MoreUMDF, MitoAction, Foundation for Mitochondrial Medicine Statement Charlie Gard
July 28, 2017. Our heartfelt condolences to the family and friends of Charlie Gard. Rest in peace. July 24, 2017. The thoughts and prayers of the entire mitochondrial disease community are with Charlie Gard and his mother and father, Chris Gard and Connie Yates. They have decided to withdraw their request to have little Charlie […]
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