Foundation for Mitochondrial Medicine


Foundation for Mitochondrial Medicine
29th of March 2018

Fireflyer Newsletter – March

Read FMM’s Fireflyer Newsletter – March Click Here for Information & Inspiration

Read More

1st of November 2017

Fireflyer Newsletter – November

Read FMM’s November Newsletter here

Read More

10th of October 2017

Fireflyer Newsletter – October

Click here to Read October’s Newsletter

Read More

20th of April 2017

Fireflyer Newsletter – April

Read FMM’s April Newsletter Here

Read More

7th of December 2016

The Fireflyer Newsletter – December

  Winter 2016 12/6/16 Noon EST teleconference for Mitochondrial Myopathy clinical trial discussion Mitochondrial Myopathy research teleconference Tuesday, Dec. 6th at Noon, EST.   This summer, Stealth BioTherapeutics (Stealth BT) shared preliminary positive data from the MMPOWER study. Study purpose was to evaluate safety and efficacy of elamipretide (previously known as Bendavia) in adults with […]

Read More

11th of October 2016

The Fireflyer Newsletter – Fall 2016

  Fall 2016 Seventh Annual Hope Flies® Catch the Cure Event Raises Over $250,000 for Mitochondrial Disease Awareness and Research The Foundation for Mitochondrial Medicine held its seventh annual celebration of Hope Flies Catch the Cure on September 23 at the Stave Room at American Spirits Distillery in Atlanta. Approximately 350 guests enjoyed the event, […]

Read More

5th of September 2016

The Fireflyer Newsletter – August 2016

The Fireflyer Newsletter – August 2016   August 2016 Why Our Hope Flies – Grace and the Martin Family Grace’s family paces themselves and takes life day by day. “We are never sure what the day will hold for us. In spite of these issues, Grace is a loving child who has a heart of […]

Read More

1st of June 2016

The Fireflyer Newsletter – May 2016

  May 2016 Hope Flies Catch the Cure – Join Us on September 23rd!   We are pleased to announce this year we are honoring Margaret and John Robinson for their support and advocacy on behalf of the entire mitochondrial disease community and in particular, granddaughter, Grace Martin.  During this year’s event will also be remembering fondly, Desmond Gray, one of […]

Read More

24th of August 2013

One Disease, Many Faces – J.B. McGee’s Family Story

For J. B. McGee’s family and many like it, things from the outside may seem perfectly fine and normal, but in reality, the day-to-day means daunting medications, extreme medical expenses, fatigue for the whole family, feeding tubes, ports, and CPAP’s, all of which are required to manage the entire family’s mitochondrial disease. J.B. McGee, husband, Chad and […]

Read More

13th of June 2013

FMM Celebrates Newest Atlanta Braves Player, Kyle Wren!

Kudos to Kyle Wren, who was recently drafted to play baseball for the Atlanta Braves!  As the son of FMM board member Frank Wren and the brother of FMM ambassador Colby Wren, Kyle is an integral part of the FMM team, and we are so very proud of his success.  Best of luck to Kyle […]

Read More

Stay Connected with FMM

  • This field is for validation purposes and should be left unchanged.
Translate »