Foundation for Mitochondrial Medicine


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    Foundation for Mitochondrial Medicine
    1st of November 2017

    Fireflyer Newsletter – November

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    10th of October 2017

    Fireflyer Newsletter – October

    Click here to Read October’s Newsletter

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    20th of April 2017

    Fireflyer Newsletter – April

    Read FMM’s April Newsletter Here

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    7th of December 2016

    The Fireflyer Newsletter – December

      Winter 2016 12/6/16 Noon EST teleconference for Mitochondrial Myopathy clinical trial discussion Mitochondrial Myopathy research teleconference Tuesday, Dec. 6th at Noon, EST.   This summer, Stealth BioTherapeutics (Stealth BT) shared preliminary positive data from the MMPOWER study. Study purpose was to evaluate safety and efficacy of elamipretide (previously known as Bendavia) in adults with […]

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    11th of October 2016

    The Fireflyer Newsletter – Fall 2016

      Fall 2016 Seventh Annual Hope Flies® Catch the Cure Event Raises Over $250,000 for Mitochondrial Disease Awareness and Research The Foundation for Mitochondrial Medicine held its seventh annual celebration of Hope Flies Catch the Cure on September 23 at the Stave Room at American Spirits Distillery in Atlanta. Approximately 350 guests enjoyed the event, […]

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    5th of September 2016

    The Fireflyer Newsletter – August 2016

    The Fireflyer Newsletter – August 2016   August 2016 Why Our Hope Flies – Grace and the Martin Family Grace’s family paces themselves and takes life day by day. “We are never sure what the day will hold for us. In spite of these issues, Grace is a loving child who has a heart of […]

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    1st of June 2016

    The Fireflyer Newsletter – May 2016

      May 2016 Hope Flies Catch the Cure – Join Us on September 23rd!   We are pleased to announce this year we are honoring Margaret and John Robinson for their support and advocacy on behalf of the entire mitochondrial disease community and in particular, granddaughter, Grace Martin.  During this year’s event will also be remembering fondly, Desmond Gray, one of […]

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    24th of August 2013

    One Disease, Many Faces – J.B. McGee’s Family Story

    For J. B. McGee’s family and many like it, things from the outside may seem perfectly fine and normal, but in reality, the day-to-day means daunting medications, extreme medical expenses, fatigue for the whole family, feeding tubes, ports, and CPAP’s, all of which are required to manage the entire family’s mitochondrial disease. J.B McGee’s first child, Noah, […]

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    13th of June 2013

    FMM Celebrates Newest Atlanta Braves Player, Kyle Wren!

    Kudos to Kyle Wren, who was recently drafted to play baseball for the Atlanta Braves!  As the son of FMM board member Frank Wren and the brother of FMM ambassador Colby Wren, Kyle is an integral part of the FMM team, and we are so very proud of his success.  Best of luck to Kyle […]

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    21st of May 2013

    Hope Flies – Walk for Abby Raises $50,000

    Hope Flies – Walk for Abby, the third annual 3 mile walk and fundraiser to honor local Broad Brook resident Abby Sauerhoefer and the Foundation for Mitochondrial Medicine, was held Saturday, April 27, 2013 at Broad Brook Elementary School and raised $50,000 for the Foundation for Mitochondrial Medicine. Abby, age 5, is the daughter of […]

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