Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine
26th of July 2017

Hope Flies® Catch the Cure 2017 – join us today!

Hope Flies® Catch the Cure preparations are in full swing, with volunteers planning a memorable and meaningful event. Co-Chairs, Kyle Hinson and Anne Worrell lead this year’s celebration with passion and dedication to help the mitochondrial disease community. Caroline Chisholm, Mandi Coogle, Miller Jackson and Abby King lend their amazing talents and leadership to the […]

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24th of July 2017

UMDF, MitoAction, Foundation for Mitochondrial Medicine Statement Charlie Gard

July 28, 2017. Our heartfelt condolences to the family and friends of Charlie Gard. Rest in peace. July 24, 2017. The thoughts and prayers of the entire mitochondrial disease community are with Charlie Gard and his mother and father, Chris Gard and Connie Yates. They have decided to withdraw their request to have little Charlie […]

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13th of July 2017

“Charlie Gard Case Captures Vast and Unmet Needs of People with Mitochondrial Disease..” 7/13/17

FMM, UMDF, and MitoAction release joint Statement Coverage The Foundation for Mitochondrial Medicine (FMM), United Mitochondrial Disease Foundation (UMDF), and MitoAction together issued a statement July 7 regarding the very difficult  and complicated circumstances facing the Gaud Family. The Mitochondrial Medicine Society’s article published July 13 references this statement. click the link below to read. […]

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10th of July 2017

Amazon Prime Day – Select FMM at Amazon Smile

Attention Shoppers – – Amazon Prime Day is upon us, so let the deals begin! Visit Amazon Smile and chose the Foundation for Mitochondrial Medicine as your charity beneficiary. When you shop Amazon throughout the year, a portion is donated back to FMM. What a great way friends can help Hope Fly. Thank you. Click here […]

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27th of June 2017

Moving the Dial for Pediatric Mitochondrial Disease Patients

Dr. Leon Dure Leads Pediatric Mitochondrial Care at the University of Alabama at Birmingham The Foundation for Mitochondrial Medicine (FMM) is pleased to announce that through its partnership with the University of Alabama at Birmingham (UAB), Dr. Leon Dure is leading a new pediatric mitochondrial disease clinical care program at UAB. In addition to addressing the clinical needs of patients […]

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23rd of June 2017

Stealth BioTherapeutics MMPOWER-2 Press Release

  Stealth BioTherapeutics MMPOWER-2 Press Release   Stealth BioTherapeutics will present top-line data from their MMPOWER-2 Phase 2 continuation trial at the United Mitochondrial Disease Foundation (UMDF) Mitochondrial Medicine Symposium on Thursday, June 29, in Washington, DC at 8:00 a.m. EDT. In attendance will be Laura Stanley, FMM Executive Director, who will report back to […]

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20th of June 2017

Eighth Annual Hope Flies® Catch the Cure

Eighth Annual Hope Flies® Catch the Cure Event Scheduled Friday, September 22, 2017 ATLANTA, June 21, 2017– The Foundation for Mitochondrial Medicine will hold its eighth annual celebration of Hope Flies: Catch the Cure on Friday, September 22 at the Stave Room at American Spirit Works.  The event will feature a seated dinner, open bar, […]

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9th of May 2017

SE Mitochondrial Medicine Symposium Highlights Ground-Breaking Research

Southeast Mitochondrial Medicine Symposium Highlights Ground-Breaking Research for Neurologic Diseases In early April, The Foundation for Mitochondrial Medicine paired with the other leading mitochondrial disease research/educational organizations, the United Mitochondrial Disease Foundation (UMDF), to jointly sponsor the Southeast Regional Symposium on Mitochondrial Medicine in Birmingham, Ala. The symposium: “Understanding Mitochondrial Disease and Mitochondrial Dysfunction:  Opportunities […]

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7th of April 2017

Thought leaders in mitochondrial disease & science in Birmingham #SEmitosymposium

Thought leaders in mitochondrial disease, science and organizational leadership meet together in Birmingham April on April 7th  for the Mitochondrial Medicine Southeast Symposium. On April 8th, patient families and advocates come together for learning and resource sharing. FMM and UMDF are proud to partner together to provide this opportunity for learning and sharing. #SEmitosymposium press […]

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17th of November 2016

Mitochondrial Myopathy Clinical Trial teleconference

12/6/2016 teleconference discussion of data from Stealth BioTherapeutics’ Mitochondrial Myopathy clinical trial. This summer, Stealth BioTherapeutics (Stealth BT) shared preliminary positive data from the MMPOWER study. The study purpose was to evaluate safety and efficacy of elamipretide (previously known as Bendavia) in adults with primary mitochondrial myopathy and genetically confirmed mitochondrial disease. Mitochondrial myopathy is primarily […]

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