Foundation for Mitochondrial Medicine


Foundation for Mitochondrial Medicine
12th of December 2018

Exciting News from FMM & UMDF!

Foundation for Mitochondrial Medicine and United Mitochondrial Disease Foundation combine to provide a larger platform for the patient community. Read the press release and fact sheet below. All are invited to a conference call on Thursday, December 13, 2018, at noon EST to discuss this exciting announcement.    To call in, please dial: 1-650-479-3207 and use Access Code: 664 […]

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13th of November 2018

A Better Way

White compression socks stretch up my thighs. A blood pressure cup tightens on my left arm, causing a twinge of pain in the IV hanging off of my left hand. Obnoxious yellow socks warm my feet while a blood oxygen monitor hangs from my right middle finger. If you haven’t guessed by now, I’m writing […]

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20th of August 2018

What I Wish They Would Say

Susan Schreer Davis, contributing writer and Voice of Hope for all those seeking inspiration in their day-to-day lives. Follow along on social media and In a perfect world, nurse advice phone calls wouldn’t go the way mine did this week. And better yet, I wouldn’t need a nurse’s advice because pain management wouldn’t be […]

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26th of January 2018

#Give28on28 for Rare Disease Day – Learn More

via GIPHY What is #Give28on28? The Foundation for Mitochondrial Medicine launches its annual fundraising campaign #Give28on28 to mark Rare Disease Day. Our goal is to have each supporter have 28 friends donate $28 by February 28th. It’s easy to help and it’s all via social media. You can help by posting today and making posts throughout the […]

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8th of January 2018

Mitochondrial Organizations Launch Pilot Phase of the Mitochondrial Care Network

Major mitochondrial disease organizations join forces to create Mitochondrial Care Network to improve standard of care for those with disease The Foundation for Mitochondrial Medicine (FMM), MitoAction, the Mitochondrial Medicine Society (MMS), and the United Mitochondrial Disease Foundation (UMDF) jointly unveil an revolutionary new initiative to create a Mitochondrial Care Network (Network). The priorities for […]

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21st of December 2017

Hope Flies® with Gratitude for the Holidays

Hope Flies® with Gratitude for the Holidays During this holiday season, we reflect back on the year with gratitude for all of our volunteers, supporters, families and friends. Many thanks to each and every one of you for your contributions of time, energy and resources, helping us on our journey to raising awareness for mitochondrial […]

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1st of October 2017

Hope Was Flying on September 22nd!

8th Annual Hope Flies Catch the Cure a Smashing Success Thank you to Hope Flies® Catch the Cure event co-chairs, Kyle Hinson and Anne Worrell and Committee Members, Caroline Chisholm, Mandi Coogle, Miller Jackson and Abby King for leading the way to another fantastic evening of friends, fun and fundraising for awareness and research for mitochondrial […]

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18th of September 2017

Global Mitochondrial Disease Awareness Week 9/17

SHARE THE WAYS MITOCHONDRIA MATTER THIS WEEK September 17-23 is Global Mitochondrial Disease Awareness Week. Mitochondria are in every cell of our body, except red blood cells, and are tiny cellular powerhouses, essential for energy creation in organ systems, like brain, heart and muscles. Approximately 1 in 2,500 adults, teens and children are affected, making […]

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24th of July 2017

UMDF, MitoAction, Foundation for Mitochondrial Medicine Statement Charlie Gard

July 28, 2017. Our heartfelt condolences to the family and friends of Charlie Gard. Rest in peace. July 24, 2017. The thoughts and prayers of the entire mitochondrial disease community are with Charlie Gard and his mother and father, Chris Gard and Connie Yates. They have decided to withdraw their request to have little Charlie […]

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13th of July 2017

“Charlie Gard Case Captures Vast and Unmet Needs of People with Mitochondrial Disease..” 7/13/17

FMM, UMDF, and MitoAction release joint Statement Coverage The Foundation for Mitochondrial Medicine (FMM), United Mitochondrial Disease Foundation (UMDF), and MitoAction together issued a statement July 7 regarding the very difficult  and complicated circumstances facing the Gaud Family. The Mitochondrial Medicine Society’s article published July 13 references this statement. click the link below to read. […]

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