Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine

Board and Committee Members

 BOARD OF DIRECTORS

Christopher Benecchi

Chris Benecchi is the Global Marketing Director for CNS Marketing at UCB, a Belgian biotechnology company. UCB is committed to research, development and commercialization of products for the central nervous system and immunology. Benecchi has worked in the fields of Parkinson’s diseases, insomnia, diabetes and multiple sclerosis among others. He has more than 20 years experience in life sciences, with prior positions at Johnson & Johnson-Ortho Biotech, Takeda Pharmaceuticals and Acorda Therapeutics working on brands including PROCRIT, ROZERREM, NEUPRO and BRIVIACT. He earned his bachelor’s degree from Colby College and his MBA from Duke University Fuqua School of Business. He and his wife have four children and life in Marietta.

Dick Boger

Dick Boger is semi-retired and president and chief executive officer of Lex-Tek International Inc., a financial services consulting company. Boger joined Lex-Tek in 2002 and was previously president and chief executive officer of Export Insurance Services Inc. He has also served as trustee in Owen Holdings, LLLP, and as a general partner/trustee of Shawnee Meadow Holdings, LLLP and Heathland Holdings, LLLP, all family investment partnerships, and Boger-Owen Foundation, a 501 ( c ) 3 nonprofit.  Boger was co-founder and a chairman of Boger, Reid & Flournoy, a commercial insurance brokerage, now a part of Brown & Brown (NASDAQ). He serves on the board of directors for Gray Television Inc. (NYSE) and CornerCap Mutual Funds, a Series Mutual Fund.  He also serves on various nonprofit boards, including The Bascom, a visual arts center in Highlands, N.C. Boger earned his bachelor’s degree in economics from the University of Michigan and lives in Highlands and Atlanta.

Daniela Campari

Daniela is a senior global marketing, innovation and communications executive, currently Senior Vice President, Integrated Marketing for the American Cancer Society.  Her prior experience as CMO for Wrigley, Global Brand Director at Coca-Cola and Business Development leader at Intercontinental Hotel Group have given her the opportunities to design and drive rapid cross-functional change and substantial performance improvement in the CPG, retailing and service industries.  Daniela hails from the U.K. and received her Bachelor’s degree in Marketing and Hotel Management from Strathclyde University, in Glasglow, Scotland.  She is eager to leverage her communications expertise to help FMM spread awareness for mitochondrial disease and connection to so many related neurological diseases.  The potential to unravel the mysteries of so many and find treatments by focusing on the common thread is exciting and powerful.

Dr. Keith Hyland

Dr. Hyland, is the Director, Neurochemistry Laboratory at Medical Neurogenetics. He is one of the leading experts in the world on neurotransmitter diseases. He trained at Great Ormond Street Hospital, Institute of Child Health, (London, UK) and directed the diagnostic and research activities of the Department of Neurochemistry, within the Institute of Metabolic Disease, a part of the Baylor University Medical Center. He has twice been awarded the Society for the Study of Inborn Errors of Metabolism yearly award and has extensive experience in the diagnosis and study of children with a wide variety of inborn errors of metabolism that affect neurological function. He is a leading expert in the diagnosis and investigation of inherited disorders affecting neurotransmitter and folate metabolism. Dr. Hyland has authored over 120 articles on rare diseases, been the recipient of numerous competitively reviewed grants over his career, and received his Ph.D. at Brunel University (United Kingdom) in 1980 in the field of biochemistry.

Anthony Soscia

Anthony Soscia, founder and President of Atlantic Pharmaceuticals since 2004.  Atlantic Pharmaceuticals is a specialty pharmaceutical company using its patented technology to produce novel therapeutics that resist attempts at tampering and may be useful to reduce abuse of certain prescription drugs. Based on the Company’s proprietary technology, SMART/Script™, Atlantic is developing a pipeline of abuse-deterrent products that are nearing pivotal testing. SMART/Script™ (SMART, Simple, controllable, resistant, insoluble, physical trap) a novel, patented drug delivery technology, was designed to prevent easy drug extraction and to deter the abuse of medications via known routes of abuse or misuse, including chewing, snorting, and injecting. Soscia was selected as a finalist for Atlanta’s Health Care Heroes in 2013. Prior to joining Atlantic Pharmaceuticals, he was in business development roles with UK based Bioprogress and Roussel Aventis. Anthony received his B.A in biology from Northwestern University and his M.S. in Biochemistry from the University of Arizona.

 

Frank Wren

After joining the Braves on October 13, 1999, Wren led the organization’s efforts in the site selection, design and construction of the Braves Academy in San Pedro de Macoris, Dominican Republic. In his first two months as general manager in 2007, Wren moved quickly to build Atlanta’s 2008 roster. Prior to joining the Braves, he was the Baltimore Orioles’ general manager in 1999 after serving as the Florida Marlins’ vice president/assistant general manager from 1991 through 1998. Frank began his front office career as the general manager of the Jamestown Expos of the NewYork-Penn League in 1985. He then became Montreal’s assistant scouting director and, in 1989, was appointed the team’s director of Latin American scouting and operations. Frank grew up in St. Petersburg, Fla. He attended Northeast High School and St. Petersburg Junior College before beginning his professional baseball career as a center fielder in Montreal’s minor league system in 1977. He reached the Double-A level before retiring in 1982 and coached in the Expos’ system from 1981 to 1984. He serves on the board of Landmark Christian Schools and he and his wife hosted the Southwest Christian Hospice – Jim Beauchamp Memorial Golf Tournament in October 2008. Frank’s interest in supporting treatment for mitochondrial disease stemmed from his teenage son’s diagnosis.

 

Terri Wren

Terri is presently the Girls Leaders’ Director/Coach for Middle School and High School at Southside Church in Peachtree City, Georgia. Terri is passionate about grooming change from the inside out, throughout the many facets of life, whether that change be spiritual, emotional, or physical. Her early career was in teaching and today she continues to serve as a substitute teacher at Landmark Christian School. Terri joined, her husband Frank as a board member of the Foundation for Mitochondrial Medicine in 2007 because of their son’s mitochondrial disease diagnosis and her strong desire to treat this disease.

 

Laura Stanley

Laura joined the Foundation for Mitochondrial Medicine in January 2010 as FMM’s first Executive Director. Laura’s professional experience is in corporate human resources, sales and marketing, yet when her eldest son was diagnosed in 2009 with a mitochondrial disease, she was desperate for answers, for hope, and for a way to accelerate action. Thus, the opportunity to transfer her corporate business skills to this emerging non-profit seemed like a perfect match. Formerly, Laura had senior human resources leadership roles at EarthLink and an Atlanta based technology start-up, EzGov, Inc.  Her early career experience evolved in executive search with Korn/Ferry International and sales and marketing in the paper and packaging industries both in Paris, France and the southeastern U.S. Laura earned her International MBA from the University of South Carolina and Wirtschaftsuniversität Wien and holds a Bachelor of Arts from Newcomb College of Tulane University. Laura speaks fluent French and conversational Italian.

 

ADVISORY COMMITTEE MEMBERS

Fred Blankenship, News Anchor for WSB-TV

Bob Baxter, Senior Client Partner/Managing Director Atlanta, Korn/Ferry International

Nate Bennett, Professor, Robinson College of Business at Georgia State University

Paula Bevington, Principal of Bevington Advisors

Brian Dorrien, Direct of Client Services at Venadar

Rich Fabritius, Managing Director, Brunner Advertising

Russ Lipari, President of  Validus Group & Chairman Health Leadership Council, United Way Atlanta.

Anne Hale Miglarese, Chief Executive Officer, Radiant, Washington, DC

Steve Rothschild, Managing Partner for PREF LLC. PREF

Sandra Setin, Community Advocate, Tampa, Florida

Bill Wilkins, Co-Founder Wilkins Parkinson’s Foundation

email info@mitochondrialdiseases.org to reach board and staff

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