Foundation for Mitochondrial Medicine

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Foundation for Mitochondrial Medicine

Board and Committee Members

 BOARD OF DIRECTORS

Christopher Benecchi

Global Marketing Director, CNS Marketing at UCB, a Belgian biotechnology company. UCB is committed to research, development and commercialization of products for the central nervous system and immunology. Benecchi has worked in the fields of Parkinson’s diseases, insomnia, diabetes and multiple sclerosis among others. He has more than 20 years experience in life sciences, with prior positions at Johnson & Johnson-Ortho Biotech, Takeda Pharmaceuticals and Acorda Therapeutics working on brands including PROCRIT, ROZERREM, NEUPRO and BRIVIACT. He earned his bachelor’s degree from Colby College and his MBA from Duke University Fuqua School of Business. He and his wife have four children and live in Marietta.

Dick Boger

Dick Boger is semi-retired and president and chief executive officer of Lex-Tek International Inc., a financial services consulting company. Boger joined Lex-Tek in 2002 and was previously president and chief executive officer of Export Insurance Services Inc. He has also served as trustee in Owen Holdings, LLLP, and as a general partner/trustee of Shawnee Meadow Holdings, LLLP and Heathland Holdings, LLLP, all family investment partnerships, and Boger-Owen Foundation, a 501 ( c ) 3 nonprofit.  Boger was co-founder and a chairman of Boger, Reid & Flournoy, a commercial insurance brokerage, now a part of Brown & Brown (NASDAQ). He serves on the board of directors for Gray Television Inc. (NYSE) and CornerCap Mutual Funds, a Series Mutual Fund.  He also serves on various nonprofit boards, including The Bascom, a visual arts center in Highlands, N.C. Boger earned his bachelor’s degree in economics from the University of Michigan and lives in Highlands and Atlanta.

Daniela Campari

Daniela is a senior global marketing, innovation and communications executive, currently in a Global Innovation Portfolio Lead role at Kimberly Clark Corporation. Formerly, Daniela was Chief Marketing Officer for the American Cancer Society. Her prior experience as CMO for Wrigley, Global Brand Director at Coca-Cola and Business Development leader at Intercontinental Hotel Group have given her the opportunities to design and drive rapid cross-functional change and substantial performance improvement in the CPG, retailing and service industries. Daniela hails from the U.K. and received her Bachelor’s degree in Marketing and Hotel Management from Strathclyde University, in Glasglow, Scotland. She is eager to leverage her communications expertise to help FMM spread awareness for mitochondrial disease and connection to so many related neurological diseases. The potential to unravel the mysteries of so many and find treatments by focusing on the common thread is exciting and powerful.

Anthony Soscia

Anthony Soscia, founder and President of Atlantic Pharmaceuticals since 2004. Atlantic Pharmaceuticals is a specialty pharmaceutical company using its patented technology to produce novel therapeutics that resist attempts at tampering and may be useful to reduce abuse of certain prescription drugs. Based on the Company’s proprietary technology, SMART/Script™, Atlantic is developing a pipeline of abuse-deterrent products that are nearing pivotal testing. SMART/Script™ (SMART, Simple, controllable, resistant, insoluble, physical trap) a novel, patented drug delivery technology, was designed to prevent easy drug extraction and to deter the abuse of medications via known routes of abuse or misuse, including chewing, snorting, and injecting. Soscia was selected as a finalist for Atlanta’s Health Care Heroes in 2013. Prior to joining Atlantic Pharmaceuticals, he was in business development roles with UK based Bioprogress and Roussel Aventis. Anthony received his B.A in biology from Northwestern University and his M.S. in Biochemistry from the University of Arizona.

Todd Lacey

Todd Lacey currently serves as the Chief Business Development Officer (CBDO) of Stadion’s retirement business. In this role, he is responsible for overseeing the relationships with current retirement recordkeeping partners as well as identifying and developing new channels of distribution and product development within the retirement business. Todd has spent his entire 20-year career in the retirement industry. Prior to joining Stadion, Todd held various roles at AEGON/Transamerica including EVP of Strategy & Corporate Development for Investments & Retirement, EVP of Business Development for the US retirement business and Senior Managing Director of Latin America. Prior to Transamerica, Todd was Founder & President of The (k)larity Group, a retirement plan advisory firm that was one of three finalists for the 2010 Plan Sponsor Retirement Plan Adviser Team of the Year Award. Todd is an active contributor to both the retirement industry and his community having served as co-chair of the NAPA 401(k) Summit and board member of the ASPPA Benefits Council of Atlanta. He has a B.S. in psychology from Miami University in Oxford, OH. Outside of the office Todd enjoys running, swimming, and spending time with his wife two daughters.

Eugene “Gene” Williams

Executive Chairman of ProMIS Neurosciences. ProMIS is a biotech company with a strong science platform, focused on creating precision therapeutics in Alzheimer’s and ALS, capitalizing on proprietary technology and capabilities to stop disease progression. Williams is also founder and manager member of Virtua, LLC that provides seasoned “virtual” management to biotech companies, ranging from start-ups to publicly traded companies. He has more than 30 years experience in both large and small companies, including SVP at Genzyme, Founder and Director of Adheris, and CEO of Executive Chairman of several innovative biotech companies. He earned both his bachelor’s degree from Harvard College and his MBA from Harvard Business School. He and his wife live in Cambridge, Mass.

Frank Wren

Senior vice president of baseball operations for the Boston Red Sox. Prior to his current role, Wren served as general manager for the Atlanta Braves. Wren led the organization’s efforts in the site selection, design and construction of the Braves Academy in San Pedro de Macoris, Dominican Republic. In his first two months as general manager in 2007, Wren moved quickly to build Atlanta’s 2008 roster. Prior to joining the Braves, he was the Baltimore Orioles’ general manager in 1999 after serving as the Florida Marlins’ vice president/assistant general manager from 1991 through 1998. Frank began his front office career as the general manager of the Jamestown Expos of the NewYork-Penn League in 1985. He then became Montreal’s assistant scouting director and, in 1989, was appointed the team’s director of Latin American scouting and operations. Frank grew up in St. Petersburg, Fla. He attended Northeast High School and St. Petersburg Junior College before beginning his professional baseball career as a center fielder in Montreal’s minor league system in 1977. He reached the Double-A level before retiring in 1982 and coached in the Expos’ system from 1981 to 1984. He serves on the board of Landmark Christian Schools and he and his wife hosted the Southwest Christian Hospice – Jim Beauchamp Memorial Golf Tournament in October 2008. Frank’s interest in supporting treatment for mitochondrial disease stemmed from his teenage son’s diagnosis.

Terri Wren

Terri is presently the Girls Leaders’ Director/Coach for Middle School and High School at Southside Church in Peachtree City, Georgia. Terri is passionate about grooming change from the inside out, throughout the many facets of life, whether that change be spiritual, emotional, or physical. Her early career was in teaching and today she continues to serve as a substitute teacher at Landmark Christian School. Terri joined, her husband Frank as a board member of the Foundation for Mitochondrial Medicine in 2007 because of their son’s mitochondrial disease diagnosis and her strong desire to treat this disease.

Laura Stanley

Laura joined the Foundation for Mitochondrial Medicine in January 2010 as FMM’s first Executive Director. Laura’s professional experience is in corporate human resources, sales and marketing, yet when her eldest son was diagnosed in 2009 with a mitochondrial disease, she was desperate for answers, for hope, and for a way to accelerate action. Thus, the opportunity to transfer her corporate business skills to this emerging non-profit seemed like a perfect match. Formerly, Laura had senior human resources leadership roles at EarthLink and an Atlanta based technology start-up, EzGov, Inc.  Her early career experience evolved in executive search with Korn/Ferry International and sales and marketing in the paper and packaging industries both in Paris, France and the southeastern U.S. Laura earned her International MBA from the University of South Carolina and Wirtschaftsuniversität Wien and holds a Bachelor of Arts from Newcomb College of Tulane University. Laura speaks fluent French and conversational Italian.

ADVISORY COMMITTEE MEMBERS

Fred Blankenship, News Anchor for WSB-TV

Bob Baxter, Senior Client Partner/Managing Director Atlanta, Korn/Ferry International

Nate Bennett, Professor, Robinson College of Business at Georgia State University

Paula Bevington, Principal of Bevington Advisors

Brian Dorrien, Direct of Client Services at Venadar

Rich Fabritius, Managing Director, Brunner Advertising

Dr. Keith Hyland, Executive Vice President, MNG Labaratories

Russ Lipari, President of  Validus Group & Chairman Health Leadership Council, United Way Atlanta.

Anne Hale Miglarese, Chief Executive Officer, Radiant, Washington, DC

Steve Rothschild, Managing Partner for PREF LLC. PREF

Sandra Setin, Community Advocate, Tampa, Florida

Bill Wilkins, Co-Founder Wilkins Parkinson’s Foundation

email info@mitochondrialdiseases.org to reach board and staff

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