Foundation for Mitochondrial Medicine


Foundation for Mitochondrial Medicine

I’m waiting

Susan Schreer Davis, contributing writer and Voice of Hope for the mito community and all those seeking inspiration in their day-to-day lives. Follow along each week at, and on social media.

I’m waiting—waiting for test results that won’t be available until tomorrow.

I sought refuge in a favorite Starbucks, only to learn a watermain break forced it to close. I tried my sister’s house, but her husband has a cough. So, I drove ten minutes more and now sit in a local coffee dive with a strawberry kale smoothie, watching fellow patrons.

A layman to my right is hunched over his computer, designing a website for his church. I overheard him talking on the phone. A young girl across the way speaks with a voice that carries above the rest. Several students stare at text books with ear buds muffling the chatter.

While I look like them with my lap top open and outer suburban façade, not one of them knows I laid on a table this morning as a technician sent shockwaves into my neck and face right before a doctor dug a small needle into my forehead for almost an hour. A slight bruise and swelling above my left eye indicates something went awry. But most would blame a random accident—not a single-fiber EMG.

In the past five years, I’ve undergone at least four other EMG’s and none have indicated muscle weakness. Since I walk on wobbly, unreliable legs, good reports stir confusion. I don’t want something to be wrong. But something is wrong. Like many others in the mito world, a muscle biopsy once indicated mitochondrial dysfunction, but some doctors question that data.

So, we wait. I wait. And daily fight for sanity.

In the book One Thousand Gifts: A Dare to Live Fully Right Where You Are, Ann Voskamp wrote, “Being in a hurry. Getting to the next thing without fully entering the thing in front of me. I cannot think of a single advantage I’ve ever gained from being in a hurry. But a thousand broken and missed things, tens of thousands, lie in the wake of all the rushing…. Through all that haste I thought I was making up time. It turns out I was throwing it away.”

My mom can attest that I’ve spent a lot of my life anticipating the next phase. But then I waited for my children to be born. And then as my first husband took his last breath. And then again for a new husband to complete our family. And now… I wait over and over for medical tests to make things clear.

But I don’t want to throw any more time away. I don’t want to bite my nails as anxiety builds. I don’t want one medical test to define me. I want to sip this smoothie, indulge in a chai tea gluten free muffin, swallow a few Advil, watch an NCIS rerun, and live my day in peace.

Tomorrow will come. And I don’t want to miss today.

About the Author: Susan Schreer Davis lives with her husband, their cat named, Eggs, and the challenging effects ofmitochondrial disease. Learn more about Susan, her latest book and many songs at:

unsplash-logoRob Bye

I’m waiting—waiting for test results that won’t be available until tomorrow. Please read Susan Schreer Davis's second blog post for FMM! #FMM #hopeflies #mito #SusanSchreerDavis#blog

Posted by Foundation for Mitochondrial Medicine on Sunday, February 18, 2018

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